Upper GI endoscopy and Colonoscopy

Just a message of support for anyone dreading their appointments for an upper GI endoscopy or a colonoscopy. I’ve had both in the last 4 weeks. 

I’m 46 and have chronically low iron. It affects everyday life such as no energy, always sleepy, no real excitement for life etc. After moving to Scotland my GP here said it needed to be looked into as it was so bad and it’s terrible for my heart. Low iron increases your heart rate and mine, resting, is about 128 on average. 

I had the colonoscopy first. The FIT came back “super positive” and because my Dad died from colon cancer at my exact age they didn’t hang around. 6 days after the FIT results I had a colonoscopy appointment. I opted for sedation. It was absolutely fine! If I knew I’d have to have one tomorrow I’d get a full nights sleep as there’s nothing to worry about. After the prep which is honestly the worst part you can’t eat or drink close to the appointment time. You then check in to the endoscopy unit. You get taken back, usual questions asked, and get changed into a gown and have a cannula put in if you’re opting for sedative. THAT was the only painful part - the border tried the back of my hand 3 times but because you’re dehydrated your veins are bad so she gave up and went for my arm. It was my turn then maybe an hour later. Wheeled into the procedure room and I was given the sedative. It had absolutely no effect. I remember everything. My colonoscopy took 25 minutes which is longer than normal because I have a “longer colon” with “sigmoid twisting” which just means it’s very long and bendy. Ordinarily they’d have been done in 10 minutes. They didn’t take any biopsies as I was clean as a whistle. “Textbook perfect” is what she said which put a spring in my step. Had a rest for 45 minutes, got to drink as I was parched (you can’t drink for several hours beforehand) and off I went. I came home and had a nap as maybe the sedative did kick in :)

So if I’m not losing blood from my colon it must be my stomach. On to the upper GI gastroscopy 2 weeks later which was last week. I opted for no sedation. I liked the idea of just being allowed home. The best part is there’s no real prep like the colonoscopy. Just stop eating the night before and nothing to drink for 6 hours before. 

It was the same as the colonoscopy up to the check in but then you don’t get anything to change into as they don’t need “access” to anything but your mouth. As I wasn’t being sedated I walked into the procedure too and hopped up on the table. Met the staff (all absolute delights) and chatted with the surgeon. She asked a few questions about my symptoms and off we went. 

I was given the banana spray sitting up and asked to lay on my side - same as for the colonoscopy. Then one of the nurses put a pulse monitor on and another put the mouth guard in. It’s not a huge thing like you’d imagine - quite small. Then it was showtime. 

I wasn’t sedated so I know it’s not my imagination, but the camera went down in one swift move. I didn’t gag at all. I was asked to swallow and that was it. It was in. You can feel it but YOU CAN BREATHE perfectly fine. You can also swallow. Just breathe slow and steady and watch the monitor if you want. It was fascinating. I have to admit one annoying aspect was one nurse kept saying in very gentle tones not to breathe so fast. I wasn’t!! :) It was my heartrate. It’ll she hadn’t spotted it was at 138 when I walked in so she assumed I was breathing fast. If I breathed any slower I’d have been unconscious! 

You can feel the camera but it’s not big or painful at all. She took 10(!!) biopsies and I didn’t feel anything whatsoever. I have a chronic bleeding ulcer and I had been sick that morning (due to ongoing stomach issues) so with all that going on I have a sensitive stomach - I FELT NOTHING. The air being pumped in isn’t noticeable until you burp and that a lovely feeling. They kept telling me how good I was doing. Over and over. It started to worry me if I was “doing good” despite likely going to die in a few weeks because of what they saw but it wasn’t it at all  

15 minutes later she’s taking it out and I’m done. She did say mine was longer than normal al because of all the biopsies. I sat up and they needed to check my vitals etc because of the biopsies and I got the speech about bleeding, aftercare etc while the surgeon wrote a report for me to take home. We chatted for 5 minutes, I was walked out and that was that - drove myself home. 

I have to have a CT and MRI and wait for the biopsy results to check what out what she found but the experience itself was grand. Please don’t put it off. If my Dad had it available to him he may have lived to see all 5 kids leave the teenage years. 

  • What an uplifting post you have written I hope all is well with you x

  • Well just today I got the letter for my CT scan which is tomorrow and then an appointment to see the consultant on Monday so not feeling too confident I’ll be getting the all clear, unless it’s my “giant” (2.5cm) ulcer they want to talk about. 

  • The waiting is very hard I’m waiting for biopsy results of a growth on my vocal chords but as I understand it they wait for all information from scans etc and hold a multidisciplinary meeting to discuss treatment I’m just enjoying every day of not knowing xx

  • Oh good luck with your results. It’s crazy to know how many people are in the same boat, just getting in with life with this huge weight hanging over them/us. 

  • Thank you so much for posting your experience. I too had severely low HB and had to have 2 pints blood and 1 of iron transfused 3 weeks ago. There in A&E they referred me to the 2 week pathway. I had my consultant clinic appointment a week later. Fast forward 2 weeks and blood tests showed my HB had gone up to 90 and then had my Gastroscopy and Colonoscopy on the same day this past weekend.

    To my delight they said that there was no cancer found and only benign polyps which were removed. I read the report again myself and it said I had been removed from the cancer pathway. Again yay! I also read that they took a tissue sample from the duodenum. That evening my wife and I were on such a high. 

    However, the worries came back (I suffer with health anxiety anyway) when the hospital called me and said they'd been asked to book me in for a CT TAP scan (whole upper body basically) for Monday just gone. I must admit, it burst my bubble and it is when I have to admit I cried. 

    Had the CT scan and now just unsure and worrying all the time again. The respite was only for a day. Plus the negative ruminations.

    I know in myself that I have been diagnosed with internal hemarrhoids that I know bleed and that when the bleeding got heavy my iron levels took a big hit. My FIT test was fine.

    I'm just worried about the duodenal tissue biopsy and the CT scan results and what happens now. On my report it did say 'removed from the cancer pathway' so I'm a bit confused again. 

    Do you or anyone else have experience of this? I don't know what the next step will be. Should I worry?

    Thank you for your help in advance and thank you all for sharing your experiences in what is a confusing and worrying time to say the least for everyone out there. 

    All the very best, 

  • I’m so sorry  but I haven’t experienced anything like that yet. I can understand why you’re worried but I’d hold on to the fact you’ve been removed from the cancer pathway. Is there a possibility they want to see if your internal haemorrhoids need treatment? I’m only guessing here. While you likely don’t have to worry about cancer your iron was still extremely low. I was told if by some miracle I don’t have cancer my stomach ulcer which has been causing my low iron is still very serious and needs treatment. I hope that’s the same for you ie you can have your haemorrhoids treated and that would be the end of your cancer investigations and low iron.

    Whatever happens I hope you get answers quickly and they’re the answers you and your wife want. Good luck!!