Welcome to the forum Hayley although I'm sorry to hear about your daughter. This must be a very worrying and stressful time, especially when the wait for your daughter's referral could be quite some time.

I hope some of our members who have been in a similar situation will stop by soon to offer their thoughts and advice but if you'd like to speak to one of our cancer nurses about this, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to help you at this time.

We're thinking of you Hayley and sending all our support your way.

Best wishes to you both,

Steph, Cancer Chat Moderator

Hi,

I am in a similar situation. My son (13) found a lump in his nelk last year. We went and had an ultrasound and was called by the GP to say it was a sebaceous cyst and that they would refer us to dermatology to discuss having it removed. 10 months later we get to the appointment to be told that it’s not a cyst. She didn’t know what it was but it had grown from 7.7mm to 1.5cm. She then referred us to ENT. The referral letter says “differential diagnosis lymph node, from but mobile and growing”. This was 2 weeks ago and we now have an ENT appointment in 2 weeks time. 
49 weeks seems like a long wait for an urgent referral. As far as I’m aware our referral wasn’t urgent. Maybe speak to the GP to confirm they did the urgent one.