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Valley1
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Hi so I had a call yesterday to ask me to go to see my original surgeon who removed a benign tumour close to my spine...

I had an mri and biopsies done recently on 2 new tumours in my neck...and have been waiting 3weeks now for results...

Anyway today we went to hospital (95mile journey) and basically he has said that he's fairly confident that these are soft fibrous tumours....but obviously still needs to have results... He has said that one tumour which is at the base of my skull would be a BIG operation and would limit my neck movement greatly...also not far from brain area.....the other tumour isn't too close to my spine and could be possibly removed if it started to have an effect on my spine....

So up to now options could be (dependant on results) leave them both and monitor with mri's regularly to see if any growth increase...

OR funnily enough he said if it was to be Cancer! He said chemo or radiotherapy could possibly shrink them to make it easier to get them out.....

It's all a waiting game now,bit I feel more optimistic than I did before we went today....

  • Hi Valley1,
    It sounds like you’ve been through quite a lot with all the waiting and uncertainty. It’s good to hear that you’re feeling a bit more optimistic after your visit today, though, even with the decisions still to be made.
    The options you’ve been given, though still in limbo, sound like they offered a bit of clarity on what could happen next. It must be a relief to know that the tumours might not be as aggressive as initially feared, and having a solid plan for monitoring them is definitely reassuring. Of course, the idea of possible treatments like chemo or radiotherapy, even though it’s a bit surreal to hear, does give you some options to consider if things take a different turn.
    Waiting is always tough, but you seem to be handling it well. I’m sure the results will give you more of a clear path forward, one way or another.
    Sending positive thoughts your way, and if you need to talk, we’re all here.
    Take care,
    Renata, Cancer Chat Moderator
  • Offline in reply to Moderator Renata

    Thankyou for your reply,yes my consultant does think they are going to be like my original tumour in 09...solitary fibrous tumour 

    Just gave to keep everything crossed xx 

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