Hi all, It’s a bit of a long story but it started when I had many symptoms indicative of PCOS and so I was sent for a transvaginal ultrasound scan, in which they found PCOS, but also a large multiseptated ovarian cyst on my right ovary (10cm). They were sure it was benign so I was referred to a gynaecologist, after a year (during which I started developing symptoms: abdominal pain, bloating, nausea) my cyst had grown to 11cm. They removed the cyst in may 2024 laparoscopically, conserving the ovary, and a biopsy confirmed it was benign (mucinous cystadenoma) and so I thought it was all over.

However, just 5 months later, it all started up again, I started feeling the same symptoms, random abdominal pains and bloating etc, and so I felt my side and noticed a lump, I went to the gp who referred me for an urgent ultrasound and was told I had a large complex predominantly cystic lesion within the right adnexa (8.6cm) and I was referred urgently to a gynaecologist. She discussed this with me and said she was referring me for urgent surgery, but didn’t say much beyond this and referred to it only as a recurrent cyst. However 3 days after the appointment I received a notification in my NHS app saying my referral had been cancelled and upgraded to 2WW, but I received no information about this. I called and was told I was still on the waiting list for surgery but it could still be 2-3 months, meanwhile my symptoms have been getting worse and I’ve been having extreme fatigue. I therefore decided to go private, and yesterday I had an appointment with a lovely Dr who is an expert in gynaecologic oncology, to be honest I was expecting him to tell me there was no risk of malignancy and put all those thoughts in the back of my head to bed,  however he told me my ultrasound scan showed features of concern including thick walls, solid areas, possibly papillary projections and thick septations (this was the first time this had been discussed with me), as well as the concern of the speed of growth, and so he is sending me for an MRI scan because in his words, although it is still likely to be benign he “cannot look me in the eye and tell me it isn’t malignant” and so now I am waiting anxiously and confused as to why this wasn’t mentioned before, and what actually are my risks of malignancy? And are they better or worse because of my previous benign cyst? Of course I am sat here googling and trying to piece together all the information I can find but everything seems to point in different directions, and so I am posting on here just to rant and also to see if anyone else has had any similar experiences?