Hi everyone, for context my boyfriend who is now 31 is in remission for a second time after a stem cell transplant in Jan 2024 for Hodgkin Lymphoma.
About 3.5 weeks ago, he noticed a small patchy red rash on his right arm, it was a bit itchy and sore, now it's gone down slightly, still red but not as aggressive as it was. He's been feeling quite fatigued and had itchy armpits but his lymph nodes are not swollen. He met his consultant about these symptoms, they have done a blood test which is normal and now he's waiting for a PET scan.
Last night he has noticed another small (*** burn looking) mark on his left arm, near the elbow. After doing some research and googling, we came across MF and CTCL. This rash looks pretty much identical to the ones online, in the early stages. We read that MF is unlikely to be noticed in blood tests or PET scans until it develops or spreads. We're both now extremely worried.
From what I can understand, the best thing to do next is to have a PET scan, a skin biopsy and see a dermatologist. MF is usually mistaken for psoriasis, eczema, or contact dermatitis, so what is the best thing to do if we're still concerned after the PET scan?
It's worth mentioning, I often have contact dermatitis on my hands so we've been using the ointment that clears mine up and it's still on his arm.
Does anyone have any experience of this?
Thanks
