Tango, that is great news that they've confirmed no spread beyond the bowel.
When I got the news there was no spread visible anywhere in other organs, I was made up. It made my day. I'm so glad to hear you have had similarly good news. Best news I've heard in a few days. I'm really happy for you!
Of course, there's a way to go, and the waiting is hard. But one would think you will soon have a treatment plan proposed and everyone keeps telling me that's a big helpful step psychologically.
Like Eastend said, the consultant will be best placed to advise further. The nurse may be able to advise to an extent depending on a few factors. I've have an excellent, well informed cancer nurse. Either way, I'm sure you'll know more at your appointment soon.
Take care. Really chuffed to hear the good news of no spread.
James4000 thank you James I was so thankful to hear that it as not spread to other areas I must admit I was a bit scared it had spread the Thursday scan showed it hadn’t. Thing I don’t understand is how can 8 biopsies be incomplete I said that to the nurse she said maybe they didn’t cut deep enough or high enough but thankfully the scan was enough for them so the nurse said I will need a op well I knew that anyway so she mentioned the trials for chemo I would be eligible that it was my decision I’m just hoping I can go straight to surgery get rid of this thing will have to see have they mentioned these trials to you six weeks of chemo Hope things are going ok for you James xxxx
Eastendgirl hi love got a call from a specialist nurse to tell me about these trials again she said I was eligible because I appear healthy with never going to see my go as if I’m never really ill apart from this. It seems to me what ever you need chemo before surgery and then maybe again after wards I don’t want to do the trials she said I don’t have to agree with having the trials then my consultant would talk about options I may have that are standard Wish they would leave me alone but it does seem like you have to have six weeks of chemo then surgery then chemo again to make sure the cancer don’t come back x
Hi tango...it is the usual procedure to be given chemo prior to surgery, sometimes with oral chemo added. The idea is to reduce the size of the tumour before surgery. A further course of chemo, sometimes radiotherapy is given postoperatively at the discretion of the MDT caring for the patient.
The choice of taking part in any trial is entirely up to you... as you will be aware, trials are carried out in all branches of medicine, to enable research and scientific study and advancement for future generations...
You don't need to make a decision if you would rather wait and discuss it with the consultant on Tuesday.. trials are voluntary .
I'm sure you're feeling overwhelmed right now, unfortunately it's part of being on the 'journey' experienced by most people in your situation
Eastendgi. Thank you for your reply I am feeling overwhelmed too much information all at once I do know they want to start my treatment as soon as possible so I’m leaving it untill next week until I see consultant I’m having rest of this week off from thinking about everything hope you are ok xxx
Tango...best idea...concentrate on being kind to yourself, listening to music you love, watching a movie reading maybe having a coffee and chat with a friend if you feel able.. thinking of you and sending love xx
James4000 hi how are you doing hope things are going ok I have been trying to eat a little more but I’m feeling lots of wind just hope I don’t have a blockage I’ve been feeling a bit sick as well lots more wind than usual I was in and out of bed most of last night with wind and thinking I need toilet but it was just wind and mucus do you get these feelings xx
Yes I definitely experience some of that, but it's OK. I've got used to having more wind and more bms. They've settled down a bit and I think my mind-gut is learning that I don't actually need a bm all the time.
I'm not doing too great today. Picked the worst day to forget my meds before going to work. I know the MDT is meeting about me again today and a nurse should call me later. My anxiety is increasing. I know it means a plan is about to be proposed and treatment soon, and that's one step closer to treatment and cure, but I'm really scared about what it'll entail and what kind of final outcome they think ill have.
I am very fortunate in having an option for a 2nd opinion. But it all involves time, phone calls, paperwork etc that can be mentally and emotionally draining - the sort of things I completely take in my stride in other aspects of life are daunting for me in this case.
Really hoping for encouraging news from MDT today and an appointment with a consultant soon. Wish me luck
Thinking of you James4000 and tangoPotter ... hope you get a call re the MDT meeting with an appointment to see the Consultant soon... it's very difficult not to 'think ahead' but it causes so much stress and the treatment/plan/ outcome is unknown at this stage... further stress impacts our mental and physical health...
Thinking of you James4000 and tangoPotter ... hope you get a call re the MDT meeting with an appointment to see the Consultant soon... it's very difficult not to 'think ahead' but it causes so much stress and the treatment/plan/ outcome is unknown at this stage... further stress impacts our mental and physical health...
