I can only imagine how nervous you are feeling, I always try to find the positive in these situations..
First of all, seeing the consultant, hearing his opinion and plan for you and your treatment is a move in the right direction.. the waiting and worrying is so overwhelming and exhausting..
Do you have anyone to go with you to the appointment, really hope so
Eastendgi I’ve just had another phone call from a nurse asking me if I want to go on the trials she said I can go have a chat with them after speaking to my consultant next Tuesday She said the good news is my cancer is just in my bowel it’s not spread any where else she said you will need a operation I knew that any way she said they used to just take you in and whip it out but I don’t know what she is on about these trials. Like for chemo x
Eastendgirl forgot to mention they also said the biopsies was incomplete so I asked how can that happen.and nurse said maybe they didn’t cut higher enough up
First things first.. being told there has been no spread from the bowel is great news and hopefully you will be able to relax a little now.
As for taking part in any trial, this obviously needs a lot more information and the advice of your Consultant... I'm not sure there is anything else you can do for now.. except be kind to yourself and deal with it on Tuesday at your consultation..
The other option is to contact the Nurse and ask for more information about the trial.. but without first seeing the consultant I don't feel this would be helpful for you.
Find that unusual as it would normally be a Consultant who gave this news to a patient.. unless of course this is something he had planned to discuss with you on Tuesday..
I know it's very difficult but please try not to overthink these calls.. I would be inclined to contact the medical secretary to the Consultant.. explain about the calls and ask if you could speak with him or have an earlier appointment..I doubt you could be seen earlier but perhaps he is able to explain the situation a little better..
Medical secretaries often work reduced hours 10-3 on a part-time basis..3 days a week... but it's worth trying in my opinion..
Nothing to lose and hopefully it will give you a better idea of what's going on at the moment..
Eastendgirl. Thank you so much for your reply your right as always I need to slow it down but just felt all these calls one after another a bit too much. My head is banging. At least I know this is confined to my bowel which is well good news it’s not any where else and is treatable but these biopsies inconclusive I couldn’t understand that because 8 was taken this nurse that phoned me was a specialist nurse and she said maybe they didn’t take enough off or high enough Thank you my friend xxxx
I'm not surprised you are feeling overwhelmed today the consultant is the person who is able to give you the precise information about the biopsies and explain it clearly to you. With due respect I feel that unless a Specialist Nurse has been authorised by the Consultant in charge of your case, information can be very misleading and confusing to the patient.. from experience..
Try to relax and breathe.. be kind to yourself and hopefully the week will pass quickly for you xx
Tango, that is great news that they've confirmed no spread beyond the bowel.
When I got the news there was no spread visible anywhere in other organs, I was made up. It made my day. I'm so glad to hear you have had similarly good news. Best news I've heard in a few days. I'm really happy for you!
Of course, there's a way to go, and the waiting is hard. But one would think you will soon have a treatment plan proposed and everyone keeps telling me that's a big helpful step psychologically.
Like Eastend said, the consultant will be best placed to advise further. The nurse may be able to advise to an extent depending on a few factors. I've have an excellent, well informed cancer nurse. Either way, I'm sure you'll know more at your appointment soon.
Take care. Really chuffed to hear the good news of no spread.
James4000 thank you James I was so thankful to hear that it as not spread to other areas I must admit I was a bit scared it had spread the Thursday scan showed it hadn’t. Thing I don’t understand is how can 8 biopsies be incomplete I said that to the nurse she said maybe they didn’t cut deep enough or high enough but thankfully the scan was enough for them so the nurse said I will need a op well I knew that anyway so she mentioned the trials for chemo I would be eligible that it was my decision I’m just hoping I can go straight to surgery get rid of this thing will have to see have they mentioned these trials to you six weeks of chemo Hope things are going ok for you James xxxx
James4000 thank you James I was so thankful to hear that it as not spread to other areas I must admit I was a bit scared it had spread the Thursday scan showed it hadn’t. Thing I don’t understand is how can 8 biopsies be incomplete I said that to the nurse she said maybe they didn’t cut deep enough or high enough but thankfully the scan was enough for them so the nurse said I will need a op well I knew that anyway so she mentioned the trials for chemo I would be eligible that it was my decision I’m just hoping I can go straight to surgery get rid of this thing will have to see have they mentioned these trials to you six weeks of chemo Hope things are going ok for you James xxxx
