I have had a lymph node under my left clavicle for around 8-9 years now that swells to great big sizes that easily noticeable from far away. The only problem is that because it’s behind the collar bone when it shrinks it’s impossible to see it. Whenever I have been to see a doctor I’ve only ever been able to show them pictures of when it’s swollen. What’s worrying is that it’s completely random when it swells and it’s recurring more and more often now, nothing related to illness or infection. 

It is rubbery to touch, moveable and not painful unless it’s swollen. When swollen it makes movement in the neck area so painful.

I had an ultrasound a few years ago and they looked behind the collar bone and saw it just to say it’s a regular lymph node. I can’t understand why a regular lymph node would act this way? 

I’m so so worried, and feel like no doctor is taking me seriously when I’m saying I know it’s not right. I’ve got no other symptoms but just the one thing feels big enough to be serious. Has anyone else had a similar issue? I’d really appreciate any help or guidance.