Colonoscopy

Hi every one I’m due for a colonoscopy on Tuesday I’m feeling really scared don’t really feel.upto the procedure as I really suffer with stress and anxiety but I know I need to do this  I have been feeling as if I need to poo but some times it’s just reddish pus and feeling very gassy but because of feeling I need to poo I’m always in the bathroom , been having problems for a while now. I thought maybe I just had internal piles but when I went to my gp doctor couldn’t see or feel any thing so did a fit test which came back positive  so I was referred for a colonoscopy  I’m so scared of having cancer  not looking forward to the bowel prep  I think your all a lot braver than me   Xx

  • I'm told the MDT should be discussing me today as they have my biopsies and 2 scan results.

    The cancer nurse offered to call me later today with an update post- meeting.

    I know lots of people say this waiting is the hardest part and it gets easier, mentally, once you have a plan. But I'm terrified what they'll tell me. Wish me luck.

  • Hi tangoPotter got everything crossed for you for next week.. your scan and good results

    Eating little and often will help you keep your strength up and keeping hydrated is really important..

    Thinking of you and sending love and positive thoughts xx

  • Hi James4000.. sending love and positive thoughts to you

    Not being negative but wanted to share with you....  'sometimes ' not all cases are reviewed by  MDT when arranged..this is due to high case load...NO HELP to you and others waiting for an update

    My cousin is going through the system at the moment and has waited for the call only to be told..sorry we didn't get round to all the cases ... the impact when you are waiting,  anticipating important news is overwhelming and I sincerely hope you get an update today...I wanted you to be prepared

  • James4000 hi James I wish you all the luck in the world  I was thinking maybe this is the hardest waiting to hear your results and what can be done for you as I know it will be for me. I’m still waiting for a scan but it’s still in the 2 eeek pathway  please keep us informed  lots of love  x

  • TangoPotter... you may have seen my post to James...

    I realise everyone is different ..for me being prepared is vital which is why I felt it was important to share with those awaiting results/news/ updates... watching my cousin waiting for a call,  then being told her case hadn't been heard/reviewed was ...

    I'm keeping everything crossed for everyone waiting...bcoz the waiting has such an impact on our mental wellbeing  xx

  • Eastend girl. Thank you so much. for your positive words it’s really nice to have lovely people to talk to on here like you  you seem to be a lovely caring person  thank you for taking the time to check in  hope your ok and your friend. Lots of love xx

  • TangoPotter..⚘️

    Care, support and understanding can make such a difference to us all.. thanku for your kind words   knowing someone cares and is there hopefully makes the journey a little easier xx

  • Eastendgirl yes I’ve just seen your post to James. Thank you for the up date  I guess we have to be prepared for any thing  thank you for sharing  xx

  • TangoPotter...I'm staying positive and hoping she was one of the unlucky ones x

  • Thank you both for your kind words and support. This forum has been a blessing.

    I heard from the nurse, after the MDT meeting. Relatively good news, which is such a relief. A long way to go, but:

    - no signs of spread to any other organs on the MRI and CT Scans

    - tumour is the most common kind, I think adenocarcinoma.

    - they are confident still of treatment and cure

    - a couple of adjacent lymph nodes look like they might be slightly bigger, so they want to do a PET scan before deciding on chemo/radio or straight to surgery.

    All quite encouraging, and they best I've felt for a month. My next worry is about whether they'll be able to remove it without the need for a bag, but I guess I'll try not to focus on that for now. My understanding is that various oncology treatments would likely reduce the size of the tumour (she even said in a very small number of patients it could remove the tumour without surgery), but surely I would need chemo/radio/immuno to reduce the size of the tumour and thereby reduce how much needs removing in surgery and reduce the likelihood of a bag.

    I'm so grateful for this news. A long journey still, but the (relatively) best news for me for a while. Thank you all for your love and kindness.