I'm told the MDT should be discussing me today as they have my biopsies and 2 scan results.

The cancer nurse offered to call me later today with an update post- meeting.

I know lots of people say this waiting is the hardest part and it gets easier, mentally, once you have a plan. But I'm terrified what they'll tell me. Wish me luck.

James4000 hi James I wish you all the luck in the world  I was thinking maybe this is the hardest waiting to hear your results and what can be done for you as I know it will be for me. I’m still waiting for a scan but it’s still in the 2 eeek pathway  please keep us informed  lots of love  x

James4000 hi James. I’m still waiting for a date for a scan it’s still with in the 2 week path way but I thought I might have heard some thing by now. Think my biopsies are due back on Wednesday but I have no date for a scan  hope things are going ok for you x

Hi Tango

Great minds! I was just thinking of you.

Perhaps you could call the cancer nursing team at your hospital (if they have a similar set up to mine?). Mine have been so helpful and able to update me on what's going on and give me numbers to call to check on scans etc. 

How are you feeling? The waiting is tough, isn't it? Like others have said.

Thanks for asking about me. I have a PET scan very swiftly scheduled for this Wednesday, then it'll be back to the MDT and they'll put the plan together bases on what they find on the PET. Seems like either some oncology first or straight to surgery.

James4000 the waiting is really hard. If I don’t hear about getting a scan tomorrow I will ring them as I hope they haven’t forgotten me  it’s two weeks tomorrow when I had the dreaded colonoscopy and the not so good news the biopsies should be back by Wednesday as that will be two weeks that’s if they do come back on time  but I know I need the scans before any thing can be done  thank you for the thought I was thinking about you too wondering how things are going. Are you eating better now  I’m trying to eat a little more  how’s the b m I’m still passing mucus and only small b m I guess it’s all part of it all  keep us posted  on your journey aand your progress  x

Hi Tango

Hope you get updates on scans soon. Did you call them in the end?

I'm ok with eating now, more or less, but worried if I'm being too relaxed on it and sometimes getting cramps. Had some occasional pain in lower abdomen, feels like around bladder but not sure. Maybe constipated a little. I'm checking with Dr and nurse today. Last thing any of us need is an extra complication.

Hi tangoPotter and James4000...

Been watching your updates and thinking of you both..

5 weeks since my colonoscopy and biopsies taken.. told waiting time is 18-20 weeks.. I wasn't given any diagnosis at the time of the colonoscopy.. this obviously is different from the 2 week timescale you were told at the time of your procedure and diagnosis..

Take care, sending to you both x

Thank you, Eastendgirl . I'm grateful for your support and kind words.

I very much hope that no news after 5 weeks and the timescales they've told you suggest a different and less problematic finding for you.

I'm at the Dr now just for them to check there's nothing else awry. I think they're worried about me getting "blocked up" and that causing this recent discomfort. I still have BMs though, so I'm hoping that's not the case now, and that with treatment likely starting fairly soon it won't become an issue. Maybe I just ate too much or too much fibre yesterday or something.

Fingers crossed. It's been (relatively speaking) quite encouraging news recently, so I'm trying to stay positive. Could really do with things to trend in the right direction

Hi James4000...I'm keeping everything crossed for you..positive thinking is vital for us all,  not always easy but very important..

Re my timescale for results.. I agree with you..it was my G.P who  my cough and breathlessness and queried whether it was related to my asthma.. he actually said.. I think you have bowel cancer  no preamble just right out there...

Take care,  sending positive vibes

James 4000 hi James I get the same as you I have smal bm but lots of wind and some times like you I get a bit of disscomfort across the bladder area just hoping not getting blocked up but I was told if you can pass wind there isn’t a blockage  good luck James my thoughts are with you 

Only me folks...

Cooled boiled water is great for dispersing trapped wind... same remedy as used for colicky babies..

Thanks. Do you mean to drink?

Thanks. Do you mean to drink?

Yes.. really helps..boil, cool and sip throughout the day 

Eastendgirll got my appointment for CT scan next Thursday hospital rang this morning  I’m nervous but I know  things have to be done  how are you doing ? Hope you are ok  lots of love xx

TangoPotter

You got this..you're gonna be fine and I don't want you to get stressed about the CT scan.. breathe and relax.. I  would tell you if it was anything to worry about and I promise you that  %

I'm sending you lots of love and xx

Eastend girl your an amazing person and very caring it means a lot that your there and you and James 4000 have been there from day one xxx lots of love x

I do care and am here for you,  always remember that tangoPotter.. not amazing just someone who cares xx

Aw, thanks Tango. You, Eastend and all on here are amazing people I'm so glad I found this community. The kindness and support here is truly wonderful, and helps us all be stronger.

Thank you all for your kind words, camaraderie and love.

We've got this.

X

James4000...

United we stand ️

Stronger together .. I always feel that to know we are not alone can make a real difference... xx

James4000 hi James how are you doing. Just want to know  what I’m finding is if I eat a bit more I seem to bleed more wondered if you are the same  it’s a bit scary more proper bleeding with wind and feeling the need for BM  if I don’t eat much or have a liquid diet the bleeding isn’t so bad  I just had dinner today and I had a lot of as I call it real blood would you think this is normal for us

I'm doing OK. I don't know if it's getting used to different sensations or if anything has changed. I'm eating well but cautiously and avoiding fibre, making sure I don't get bloated etc. I'm usually OK and can pass bm and wind.

I pass a little blood here and there. Had loads for 3 days a couple of weeks ago, which was scary, like you say. I've been told that it's normal for the bowel inside to get cut a little and it can bleed a lot. I believe (but please ask a medical professional) we need to do the following. This is a mix of advice I've received and things which work for me, so take all with a pinch of salt please:

Not strain too much for bms; eat low fibre (do you have a list for this?); eat little and often rather than 3 big meals; I also tend to elevate my feet for BMs- always have a footstool in the loo, which I think opens up the back passage more; hot water bottle on the tummy/abdomen when feeling cramps/bloating

Also consider a stool softener - I haven't done this yet as I'm trying to limit medication and haven't quite needed it, but I'll biy some, just in case.

Hope some if this helps for you. Definitely do call an expert about the blood, to be on the safe side. Hopefully it'll clear up for you in terms of large blood amounts.

Take care x

James4000 thank you for your advise  it all makes sense  I didn’t know the bowel gets a bit cut. You always think you’re going to bleed to death. Well I do  but like I said if I eat a little more I seem to bleed more if I hardly eat I’m not too bad  xx