Hello, 

I’m sorry I haven’t been through similar but couldn’t read your post and not send a wee message. 
I am presuming as you are a nurse you are reading between the lines of what is happening as as someone who is not medically trained I wouldn’t see the correlation between checking breasts and spine MRI and leukaemia. I have no idea what this link could be but the possibly benign is a real positive to hold on to over the festive period, I would really hope that your specialists would have an inkling and be more likely to write possibly malignant if the chances were higher with that.
it actually sounds to me like they seem as confused as you are and want to test bloods and get lots of scans done.

whilst not being helpful, I wouldn’t say they seem to be looking for leukemia or anything specific but actually that they don’t know.

The waiting is the most awful part, I’m awaiting an MRI tomorrow for a mass found incidentally, I’ve had a very fast referral and nervous as anything. Also a mum, I’m 38 and sick to my stomach with nerves. Hate that I feel Xmas is just a pain where no medical staff are working this year.

sending hugs, there is a a lot of us this horrible wait together, don’t think you are alone x 

Hi,

thank you for your reply, it has helped a little. I’m sorry you are going through similar. 

I’m on edge. I’ve read every bit of information I can find relating to bone marrow issues. The breasts thing, it’s because of cancer has spread, it can leach in to your bone marrow. 

I’m groping myself non stop now trying to work out if my boobs are normal or not!! I want to be able to just run into an all night clinic and pay to get them squashed to see if they’re ok!

I keep thinking about the “possibly benign” thing and knowing that a screen was negative just a few months ago. 

I’ve had bone pain for years - pelvis due to 2 full term babies. All the literature suggests leukaemia comes on fast. But then I worry that I’ve got a cancer somewhere, without symptoms and it’s gone so far it’s now in my bone marrow. 

I’m a complete mess. I’ve had the worst 6 months with one thing or another and I thought, on Friday morning “right everything is sorted and under control, I can relax and enjoy Christmas” 40 minutes later I was getting that news. 

How are you managing to cope with waiting? If you’ve got any good tips I’ll take them! I really hope you’re ok.  

I'm one of the NHS workers that should be working over Christmas, but because of my back, I’m signed off. I feel horrendous guilt. 
 
Please keep me posted with how you get on and if I can help you in anyway, just let me know. 

sending you huge hugs back xx

How are you today? When do you expect to hear anything from the hospital? Is it scans you are now waiting for? 
thanks for explaining I understand the link now. When I tried to learn a little more about it (I am interested as have my own spine issues after an accident) it seems to say there are 6 reasons for marrow changes, and yes you are right one of them is hematological issues, however this seems to be the least likely of all of the reasons. It does also say that injury and damage to the area can cause marrow changes, which I would like to hope would be your most likely bet considering you have actually had an accident and are still off work with the pain. 
I really do think they are just being very thorough looking at everything and every option possibly. 
My friend who is a doctor said a GP works best case scenario up to worst case and that hospital staff do the opposite. So perhaps your team are just doing that and ruling out the more sinister things first. 

with regards to waiting - I can’t even take my own advice. We shouldn’t Google, we shouldn’t worry but we do. I make myself sick with worry, but I am a mum too and at least they keep our minds off things for even a short while! 

for me I’ve been trying to walk, be out in nature and finding podcasts I’m really loving. It just passes the time. I’m not really enjoying too much just now in the waiting game, but I’ve accepted that just now is about passing the time.

hope you get some answers soon, keep in touch x