Hi so long story short been going to gp for about 3 years now with a palpable lump in my back in the kidney area I originally noticed it about 3 years ago and it was roughly a golf ball size maybe slightly bigger was sent for MRI 2 years ago on the 2WW pathway had MRI but had no consultation afterwards and received a letter that read we do not suspect It to be anything sinister and appears to be a lipoma.
Since then the mass has grown I’m in so much pain in my back I get pins and needles down my arms and legs and pain radiating up my spine. Went back to gp who noted it as a 3cm mass ( it’s actually about 10cm if not more) and a new referral to a surgeon to have the “lipoma” removed as the gp thinks it could be pressing on a nerve. I’ve swelling in the area blood in my urine and excruciating pain in my kidneys which they said was just an infection went a&e the doctor didn’t even look at my swelling just or even feel the area just gave me antibiotics and sent me on my way.
I went to see a specialist in general surgery who has stated I need a new MRI which I’m still waiting for he mentioned the mass is very deep and large. He has wrote to my gp stating that once he receives the MRI report he will then be referring me to a sarcoma specialist unit.
im quite scared now as I thought it was a lipoma not a sarcoma anyway had similar experience and could maybe understand why I’m being referred to a sarcoma unit
