Feeling messed around

This might be a bit long winded but I feel like I need to get this off my chest, so sorry in advance! 

In August I found a tiny, painless but hard lump. I didn’t think anything of it for about a week thinking it would go away on its own but it didn’t. After a few back-and-forth visits to the GP I was referred to a specialist who ordered an MRI. The consultant (very confidently) said that it showed I had a fistula so scheduled me for surgery. Surgery day came, had a chat with the surgeon who gave me a very clear plan for treatment and I felt alright. It was annoying, seeing I’m a student and have essays and revision to get on with but it seemed like no big deal given I thought it was something really serious. So went under general anesthetic expecting to wake up with a sore bum, but they didn’t find any fistulas. They did find the lump, but they didn’t biopsy it. The surgeon is aiming to talk to a specialist gastroenterologist this week so he can call me to make a new plan. 

At the start of all this I was thinking the worst anyways, so when I was told it was a fistula I was happy to get on with things. But now I don’t even know what to think. The surgeon said it was ‘highly unusual’ but that I shouldn’t worry, but how can he be sure if he doesn’t even know what he’s dealing with?? I haven’t even had a blood test which I thought would be a basic thing to do. I’m struggling to focus on my uni work and I’m reading into all sorts of things (which I know is bad) but I feel like I haven’t got any answers. I’m not sure if it’s because I’m young and relatively healthy that they’re not covering all bases or there genuinely is nothing to worry about? But how can I believe that when they got the MRI results wrong. Has anyone else felt like they’ve been messed around? I’m so frustrated. 

  • Hello Lilypad2001,

    When you're waiting for further investigation or tests it can feel like uncertain time and it can be natural to think the worst, but it might be a good time to focus on other things for now. As I'm sure you know, reading into things can end up increasing anxiety rather than making you feel better. The only person that can diagnose you is your doctor so it's important raise any questions or share any concerns with them. I hope you get some news soon on a new treatment plan.

    Best wishes,

    Moderator Anastasia