Incidental 8cm Dermoid Cyst - Post menopausal

I was referred by my doctor on a 2 week wait after experiencing a tiny amount of postmenopausal bleeding. I was told during my ultrasound that everything looked fine but I had a cyst on my right ovary. I had my follow-up appointment to discuss the results a couple of days later and was alarmed to hear that I have an 8cm suspected dermoid cyst. They are sending me for an MRI scan and taken a CA125 blood test. I knew that they'd do a blood test because of my age (52) and because I've already gone through the menopause, however, it's the fact I'm being sent for an MRI that's freaking me out and it's making me think the cyst is suspicious. I don't know the results of my blood test and I'm not sure I want to know because if it's high, I'll completely lose the plot. I'm already a nervous wreck! I have no doubt they'll want to remove it because of it's size and that's fine. I'm just terrified it might be cancerous. Any words of wisdom or shared experiences would be greatly appreciated.

  • I almost had a hysterectomy because of my 10cm dermoid cyst but I opted for an oophorectomy luckily as I was not menopausal and it turned out not to be cancer. My ca125 levels were raised along with another cancer marker but it was just a ball of hair and teeth  

    I hope yours is just a cyst like mine. It was scary times but I was lucky. Loads of scans and fear. It's horrible to go through.

  • Thanks for taking the time to reply. It's all so terrifying! I don't need my ovaries anymore so they can take them if they need to! I just don't want to get bad news! I just wondering if sending someone for an MRI is fairly normal or not? 

  • I think dermoids often have solid areas so they look suspicious on scans and the doctors want a clearer view of what they're dealing with so they don't go in blind. I got a letter after my mri saying they were concerned it might be an immature teratoma and they sent me for a full body CT to rule out spread. Until your cyst is biopsied they won't know for sure though imaging will indicate what the chances are it is cancer. If it's adhered to anywhere, if there's more solid matter out with the cyst etc. I had two dermoids so on the scan it looked like a primary and a secondary on my other ovary which is why they offered the hysterectomy. I was 39 so not really wanting to go through a surgical menopause I took the risk of a delay to find out for sure.

    If it is an immature teratoma you're dealing with it's more survivable than other forms of ovarian cancer. I know that everyone freaks out at the stats for ovarian cancer but it depends on stage and type. Your doctors will discuss more with you when they know more and it's a very good chance that it's just what I've had. An icky dermoid.

    So yes, if they want to rule out cancer and want to know more about the anatomy of the thing they're dealing with it's completely normal to go for an MRI.

  • Thanks again Lyns21. It does make sense to check more carefully when it's a complex cyst. I'm going to try very hard to focus on the more likely benign outcome. Wish me luck! ️

  • Same boat! They found an incidental mass just shy of 8cm on my ovary from an unrelated MRI. I have been waiting two weeks and have just heard I need to go for a specific pelvic MRI but no date in sight and still haven’t spoken to any gynae. My CA125 was tested August and came back normal but does not stop every day feeling like a year while waiting to find out. All clerical staff and my GP assure me of the high chance it’s benign and nothing to worry about but I don’t feel I will settle until I know for sure. It’s horrible waiting, especially this time of year. I hope you will get some answers very soon! 

  • Hi cloudy1986, sorry to hear it's taking so long to get things sorted out. It's good that your CA125 has come back normal. So far, I'm have no idea what my blood test results are. The nurse who took my blood seemed to think I would be able to get my results on MyMFT later that day, but so far I've had nothing. She told me not to be alarmed if it is red/urgent (something along those lines) because their testing was extremely sensitive!! I'm not sure I want to know this at the moment because my anxiety is really bad. Waiting for answers on things like this is horrible! I think I was told I should receive my MRI appointment within 2 weeks. However, I'm not sure if she meant receive a date within two weeks, or have the actual MRI within 2 weeks. No matter what, it's impossible not to stress and I'm exhausted from having it going round and round in my head all the time. I just want to get it out of the way and it not to be anything sinister. Keeping my fingers crossed for you and me. 

  • I think the hardest thing is the no comms with a professional when have questions. I was told 2-4 weeks for MRI after it had been requested so hopefully it is only the 2 weeks for you. 
    my last MRI where they found the incidental mass took 3 weeks to come back with the report, and I just don’t feel like I’ll cope with a possible 7 weeks longer of this. I am the same as you, just absolutely exhausted from the not knowing. 
    did you get your results back? I only know mine as I was being tested for all sorts with struggling with digestive issues so I actually had my CA125 done a month before my MRI came back. Something I do know is that a dermoid cyst can heighten levels of that in your blood due to the yucky stuff it’s made from, so actually CA125 is a sign of other things too. Just kind of tells you there is something there. 
    mine was 15, but I read another poster was 8 so I started to worry why mine was higher than that. 
    I think we are just going to worry until we know! Sending hugs. Keep me posted! 

  • Just to say: CA125 can be seen over 1000 in malignancy. Being lower than that doesn't mean you're definitely out of the woods but I had over 100 just from a heavy period. So as you pointed out it can be lots of things. It really will be when you get biopsied that they know what is truly going on. I'm sorry that there's such a delay in knowing as at least when you know you can make plans. Praying for you both x

  • Still haven't had my results through yet. I think anything above 35 on the CA125 will result in a 2 week wait referral. I'm also aware that cysts and many other harmless conditions can raise your levels. At the end of the day, we just need answers and not have to wait for an unknown length of time to find things out. The constant scary thoughts are so draining. Thanks also to Lyns21 if you're reading this, for sharing your information. I'll keep you posted. Sending hugs and positive thoughts.