Raised CA125 but previous clear US

Hello

I’m very worried. Im 42 and this has been going on a while.

Long 5 year back and forth to dr with tummy issues - pain, tenderness, IBS type symptoms, reflux.

Dr felt something pop out when I breathed in so I was referred for CT scan. That was all clear. Roll on a couple of years and symptoms worse.. localised painful spots (worse one to the right of tummy button. Feels like something will pop when I breathe in). Had a gastroscopy and small polyps tested (all clear). Has x1 internal … all clear. Had another OS to check for gallstones … all clear. FIT test to check for blood in stool … guess what .. all clear 

Has CA125 in July .. raised at 41

Saw gynaecology within x2 days (amazing) who basically told me… my issues are not gynaecology related but to retest CA125.

CA125 is now 109 although I was on my period at the time.

I’m now on a two week wait to see gynaecologist again and I’m terrified. I can’t sleep and spend every night in the early hours scrolling.

i know everything clear but I have constant pain, bloating, painful localised areas in abdomen and now a high CA125.

Parents
  • How long are you expecting to wait for CT results? I have terrible gastro issues and incidentally found a large mass on my ovary, I am told to expect it to be a cyst but can’t tell fully until my next mri requested by gynaecology as it wasn’t looking in right area for them to be able to fully see it. 
    I am hoping that my years of stomach issues and back pain will all be resolved with the removal of this mass. 
    the waiting is awful so sending hugs and positive thoughts your way. 

  • I’ve been told about 2 weeks. I’ve got to wait for them to discuss me at a panel as it’s all a bit of a mystery at moment. I’m sure Christmas will delay things. The wait is horrid isn’t it. I next keep googling which as Lyns said, disproportionately shares worse case scenarios. Hope you get some answers quickly. I’ve found on these chats that no one updates and many posts are years old.

Reply
  • I’ve been told about 2 weeks. I’ve got to wait for them to discuss me at a panel as it’s all a bit of a mystery at moment. I’m sure Christmas will delay things. The wait is horrid isn’t it. I next keep googling which as Lyns said, disproportionately shares worse case scenarios. Hope you get some answers quickly. I’ve found on these chats that no one updates and many posts are years old.

Children
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