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Kidney cancer new diagnosis

Lisbrum
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I have been having investigations after my GP found hidden blood in my urine. First I had gynae scans - all clear then a cystoscopy also clear. Urology were going to discharge but thankfully there was still blood in the urine sample they took so I was sent for a contrast CT scan of pelvis and kidneys. I then received a letter on the nhs app to say they have found a small suspicious area on my right kidney. At this point I have not seen a doctor. I called up for further info and two days later a doctor called me. She explained they believe it’s cancer. The MDT met yesterday and I was told I’d hear something within two weeks. I still can’t believe I haven’t seen a human being about anything. What was the next steps?? 

  • Hi Lisbrum,

    Welcome to Cancer Chat.

    I can see you have also posted in the 'Ask the Nurses' section of this forum, so you'll get a reply from one of our nurses soon and I hope that this will be helpful.

    I also hope you're able to get the appointment and the information you need soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

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    My dad's kidney cancer was discovered during an x-ray of his kidney for stones he was in agony with. It meant it was discovered at an early stage so 18 years later he's completely cancer free. It took the affected kidney being removed but that was it. I'm sorry you're going through it but hopefully it gets dealt with in one op like my dad's and then you can say goodbye to cancer.

  • Offline in reply to Moderator Ben
    Hi 

    My MDT met on 9th December and I had to wait until last week, 16th Jan to see the urologist, That’s three months from referral. It seems like I’ve waited ages. Is that normal? 

    At my appointment on Thursday I met the urologist. He didn’t introduce himself so I only know his name from my clinic letter. He told me he believes I have a small kidney cancer of 1.2cm on my right kidney, He said treatment options are partial nephrectomy or ablation. I asked for pros/ cons of both and he told me to read the leaflets  that the cancer nurse then gave me. She then told me to go home, read the leaflets  and then email her with my treatment decision. They said they didn’t know the waiting times for either procedure. 
    My husband and I feel shell shocked after the appointment. I felt like I got minimal explanation, advice or empathy. I’m unsure where to go next and wonder g what other people’s experience had been. 
    I am in a big city and this urologist is one of the best in the country  apparently, 

  • Offline in reply to Lisbrum

    My mum got similar under gynaecology for endometrial cancer. My dad had a full nephrectomy for a small contained tumor. I don't know why they did that and why they're offering partial to you. I guess if it's on rather than inside it might make a difference. I wish I could be of more use to you.

    I do sometimes feel doctors are a law unto themselves but you can complain to PALS and contact the nurse asking her for further counsel. You should be informed enough to feel more confident in your decision not left loose. Might be worth phoning Macmillan themselves for advice.

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