I had what turned out to be a non cancerous cyst but I was offered a hysterectomy before they even knew that it wasn't cancer. I opted to have the ovary and another cyst removed because I wasn't ready to go through menopause without the definite diagnosis. I wasn't bleeding as heavily as you and I was less than 40 so I don't understand why they haven't offered you similar.

Exactly this - it just doesn't make sense to do any more tests. They can see what is there so I don't understand why they don't just remove the lot and do a biopsy from that. The most frustrating thing is no one is talking to me so I'm not getting any opportunity to ask anything. I tried asking the secretary what a biopsy involved and all she knew was it was a 30 minute appointment...

Try hang on to the fact your bloods were clear, I think that’s a real positive that you can hopefully feel better from. Lots of people in here have raised levels and it’s still benign but I do think that’s good yours are clear. 

the waiting is awful, I am in the same boat. A physio told me a week ago that there was a mass on my mri 7cm ovary area, that’s it, that’s all the info I have, gynae referral yet to be picked up and not one person to speak to. GP can’t see anything else on the report and no answer from gynae either. The week of hell! 

I remember well how horrible the fear is and the waiting. Good luck to both of you x

Yes google is not my friend because I googled and what seemed good wasn't uncommon to still not be good. I'm definitely a glass half empty type of person.. Doesn't help that I have history with that hospital either. Had botched surgery that resulted in PTSD and a formal complaint. Huge amount of anxiety having to go there again and this consultant isn't filling me with faith. 

I'm sorry you are in a similar position. I believe you are supposed to have an appointment within two weeks - mine was two weeks and a day. Definitely ask your GP to follow up if you exceed that.

Thank you. Helps to vent. 

Hello there. My wife had gone to a similar process at the start of 2024 when she had bleeding and unfortunately, she was later diagnosed with ovarian cancer but the treatment that she had received have been successful and it had inactivated all of it after a couple of months. However, her mental health has hit an all-time low since she had been told that her prognosis was treatable but incurable but had also been told that she could have many years to live with some monitoring and maybe more treatment in the future. She has been told that the cancer was not caused by any faulty genes so we are in the dark about how it occurred in the first place. Although my wife has not followed the advice given by the mental health team and her doctors that she needs to keep her mind occupied, her physical health is good and the important thing to do is the try and keep your mind occupied however hard it is with this on the back of your mind. There are plenty of support groups out there including MacMillan and the oncology team that would be treating you but one thing you should avoid is trying to diagnose and look for possible treatments and cures on the internet. The important thing is to listen to your doctor that would be treating you as he or she would know your case and how it is progressing. I hope that everything does work out for yourself.