Vulvar melanoma? Scared and alone

Hi,

around 2/3 years ago I noticed several brown to dark brown patches on my vulva but nothing in my vagina. They were not raised, painful and looked like normal skin but just pigmented. I’ve only recently turned 26 and they seemed to occur after I came off the pill so I never thought anything of it. 

they have remained symptomless and several GPs and gynaes have seen them during other procedures and never mentioned anything. Last year, I saw a private gynae as I was struggling to get an endometriosis diagnosis on the NHS and she said they were ‘vulvar melanosis’ and nothing to worry about, but it might be worth seeking a second opinion for ‘other related skin disorders’. 

I trusted her judgement and moved on with my life.

Recently; I’ve had debilitating health anxiety. I’ve ended up in A&E twice in the last month with chest pains and severe stomach cramps and chest x rays and blood tests revealed nothing. The doctors keep putting it down to my anxiety. 

Now I’m panicking these patches were mucosal melanoma all along and I’m at the end stages of it (as it’s very aggressive). I mentioned this to my GP who said she wasn’t worried and all my symptoms could be easily explained but I pushed for a fast track referral.

I’m just so scared by the time the biopsy results come back it will be too late given how hard mucosal / vulvar melanoma is to treat in later stages  my partner and mum think I’m being ridiculous but I’m sick to my stomach. My chest hurts all the time and now my bones are aching. I’m so scared 

does anyone have any advice or reassurance for a very scared person 

  • Hello sophieseb,
    It sounds like you’ve been carrying these worries for a long time, and it’s no wonder you’re feeling so overwhelmed. Health anxiety can be incredibly hard to manage, especially when there’s an unanswered question about a diagnosis.
    You’ve done the right thing by following up with your GP and seeking that fast-track referral for peace of mind.
    The fact that several doctors have examined you and reassured you in the past might bring some comfort, even if it doesn’t completely ease your mind right now.
    There are lots of supportive members here who understand these kinds of fears and hopefully some of them will be here shortly to talk things over with you.
    Take things one day at a time, and know that you’re not alone.
    Best wishes,
    Renata, Cancer Chat Moderator