Ovarian cyst CA-125 levels of 100

Good evening, 

whilst on holiday in Cornwall last week I had to go to hospital with acute abdominal pains and stabbing pain/pressure in my back passage.


when finally seen appendicitis was suspected after raised white cell count in blood but couldnt be ruled out until I had an ultrasound, unfortunately that hospital didn’t have an ultrasound machine! 

next day admitted to a different hospital, appendicitis ruled out but a 4.7cm cyst was found on my left ovary, was advised they’d run more markers on my bloods that I didn’t need to wait for so I was discharged with pain killers and told to follow up with my gp after my holiday. Same day received an email from my gp giving me a 2WW as when my bloods came back after I’d left and showed CA-125 levels of 100 and the scan notes says “complex cyst with solid area” 

so now I’m freaking out somewhat and doing way too much googling!!

I’ve now been onto my healthcare insurance and I have an appt this weds, which I know is fab and will hopefully find out more soon and quickly, but anyone else gone through this? 


41, premenopausal 

  • I am waiting for results and an MRI - found a 7cm complex ovarian cyst with solid area in me too. I had a blood test on the spot (yesterday) and am now waiting for those results and an MRI…. Not sure if I should be worried or not!!

  • Sorry to hear about your diagnosis but my wife has been through this earlier this year when her CA125 level was 88 and also had an 8cm complex septated ovarian cyst with solid components which they had confirmed was cancer on her right ovary. Fortunately after a couple rounds of chemotherapy, the treatment had worked better than expected and by the time she had reached the end of the chemo, all of the cancer had been inactivated by the end of July. Her CA125 levels have remained at pre-dagnosis levels since then but will need to be monitored and have maintenance drugs for the foreseeable future.

    The important thing and is easy to say is don't worry or get anxious if you do get a confirmation, it sounds like it is the type that responds well to treatment and all of my wife's pre-dagnosis symptoms had gone after 2 rounds of treatment. Also don't speculate on it by looking on the Internet as a lot of this information is out of date and does not apply to any one person. Wishing you well well.

  • Offline in reply to cjb2

    My cyst turned out to be a dermoid. The solid areas were hair and teeth which is a bit gross but a relief from it being cancer and the concerns around that. I had raised ca-125 so it's not entirely diagnostic.

    I hope fozzie and pmdd don't have cancer and have similar to me so that they have a clean bill of health after surgery. I hope your wife remains cancer free and her medical team are supportive, observant and kind.

  • Thank you - I'm glad yours was benign and hopefully mine will be the same! Xx

  • Offline in reply to cjb2

    Thank you cjb2, I’m so pleased to hear your wife has got through this and is out the other side. As scary as the C word is it’s reassuring to hear this positive outcome. The thought of chemo fills me with dread mind, but will try to not think about that before I know more. Easy to go through every scenario in your head mind. Channeling positivity 

  • Fingers crossed for you PMDD. We got this

  • Pleased to hear this Lyns21, so did they just remove the mass? Or did they take more?

  • They took my right ovary, tube and the cyst on the other ovary so I'm still ovulating and have not gone through an early menopause but they were so worried that it'd be cancer that they had offered me a hysterectomy to begin with. The surgeon gave me three choices in the end. Hysterectomy, removal of the cystic tissue which included the full right ovary and a biopsy during the surgery that would mean I would be under for a long time or I could have the cyst tissue removed and wait on full histology before deciding whether to have the hysterectomy. I chose the third option because I didn't want to believe it was cancer and I didn't want to be under anaesthetic for a long time. I was lucky that I didn't need two surgeries, but it was just luck. There was no information that could have been had to help me make the right decision.

  • I hope you stay safe and well, thank you for sharing your experience. Now for a sleepless night for me before my appt tomorrow!