Toenail melanoma

I’ve been put on the 2 week cancer pathway for a highly suspicious toenail .until now I knew nothing about melanomas under nails .I’m waiting a punch biopsy . I had lobular breast cancer 3 years ago , so I’m actually pretty calm out this new development . But im struggling  to find much info about it , its quite a rare cancer . Has anyone experienced this ? As a primary or secondary cancer ? What were treatments like ?

thanks in advance 

  • Hello BD29

    I'm sorry to hear that you're currently waiting for a bunch biopsy with the possibility of a melanoma under your nail. It's understandable that you have some questions and concerns. 

    This type of melanoma is uncommon and as you've already mentioned, there isn't a lot of information readily available online. We do have some general information about melanoma on our website that you may find helpful but I'd also suggest you give our nurses a call to talk things through with them. I know they will be happy to try to answer your questions and offer any support and advice they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope that your appointment comes through soon BD29 and you don't have to wait too long for the results. Do let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi,

    I'm afraid I don't have personal experience of subungual (nail) melanoma (mine is on the skin) but I do know a small number of patients who have been diagnosed over the years. If you search 'subungual' in the Search Forum bar at the top of the page you will find some posts - although they are from last year I'm sure they may be helpful. For general information this website is very informative Acral lentiginous melanoma - Melanoma Focus

    Subungual melanoma is quite rare, only about 3% of melanoma cases are subungual. As far as I'm aware it is always a primary melanoma, not secondary (it's not usual for a superficial spreading (on the skin) melanoma to then spread to under the nail. 

    If it is diagnosed as subungual melanoma the treatment is usually the same as for superficial spreading, however, because of the location of the melanoma and the need for another, wider, removal of tissue, it sometimes necessitates the removal of the toe. Further treatment is then dependant on the depth of the melanoma. Over a certain depth a Sentinel Lymph Node biopsy may be advised - if melanoma is then found to have spread to a node(s) further surgery may be offered and/or adjuvant drug therapy offered.

    I hope this helps and good luck with your appointment. Please let us know how you get on,

    Angie (Stage 3 melanoma patient since 2009)