Hi all,

I've recently beeen through montha of hell starying with me finding a lump in my neck to gp to the getting an urgent referral to ENT, to the neck lump clinic. 

I then had an endoscopy,  core biopsy and FNA biopsy. During my appointment the consultant had said i could have something called a branchial cleft cyst. 

I had another appointment made for end of April, but then had to chase for my biospy results for 3 weeks even though knew they were back.

To then have a really disappointing call with the consultant who said my results are inconclusive.

I was then sent for a CT scan,  and waited weeks for the results 

They the decided it was definitely a branchial cleft cyst,  I was booked in for surgery 2 weeks after that.

That was two weeks ago. The consultant told me on day of surgery the reason they wanted to remove is because they can still be cancer. He said routine histology would be performed on the cyst, and that he would write with the results as he expected it to not be. 

However today I got a phone call asking me to go back to see the consultant to dicuss my results face to face.

The doctor specifically said he would not see me unless the results showed 'something' 

I'm now really worried.  After months of stress and then thinking it was all ok,  I'm back to worrying.

Has anyone had this? If so what type of cancer was it? The doctor mentioned squamous cell carcinoma, but would this be from the cyst or from another primary site?

1 week and 3 days is such a long time. Especially after months already.

I can't see why they'd be asking to see me if it wasn't cancer, any help or reassurance would be gratefully received.