Awaiting histology for possible thyroid cancer

Hi all, this is a long one so bear with me and I apologise in advance . I’m not sure what I’m after but I have been on such a rollercoaster I just don’t know what to think or feel at the moment. 

so, I’ve always had issues with my thyroid levels on blood tests, for years I’ve felt like I’ve had a lump in my throat but I was told it was my anxiety… when I was pregnant 2 and a half years ago I went to the gp who was shocked by  how swollen my thyroid area looked and referred to endocrine whilst pregnant, he looked at me said my levels were borderline but not concerning and he would follow up after I had delivered.. that never happened and being a new mum again and stuff I just cracked on, fast forward to January this year I’ve had trouble swallowing and voice changes so I went back to the gp, she ordered an ultrasound, I had that in march and it picked up cystic nodules in my left lobe and a U3 1.5mm nodule in the right. I then had a FNA in April, but because my gp didn’t refer me to a consultant by June I hadn’t heard a thing, so I went back to the gp who wrote to endocrine and then it was just like madness within 2 weeks I was given an appointment on the head and neck cancer pathway and told my biopsy was inconclusive and that they are suspecting the follicular lesion could be cancer, was told it’s about a 40% chance and I would need a Hemi and if it was positive for cancer I’d need the rest removed, so I opted to have a full thyroidectomy as to be honest this is the shortened version of all the chasing of results I’ve had to do, I felt just a bit lost in the system.

So I had my total thyroidectomy on 23/7 I have been told I should get my results in around 2 weeks but it may take longer . That’s tomorrow, well today as I’m wide awake, however that I probably won’t hear anything until my follow up on the 19th which at the moment is virtual but may change to facE to face if the results are in by then. And I just feel like 100% relieved to have my thyroid out especially when I have seen the picture of what they removed and the fact the left love was tricky and I ended up being in surgery for 6 hours instead of 2 but my consultant was just very relaxed told me all went well and not to dwell on what has been removed and he will follow up with me and that’s all I had granted I was asking morphine so I just didn’t think to ask for more info than I have, but I feel in limbo again that I may have had cancer, I may need more treatment I just don’t know, i may have cancer still, I have just in the last 8 months lost a lot of trust in my Gp and the hospital I’m at   But I also don’t want to be a nuisance chasing up my results if they won’t be ready etc 

  • Hi Bettylin31,

    Welcome to Cancer Chat. It sounds like you've been through a lot with this, and lots of chasing involved which I'm sure must have been frustrating and disheartening.

    It's good to hear you've had this procedure done and that you have an appointment coming up to discuss things. I know the uncertainty at the moment must be difficult.

    If you think it would help, there is no harm in calling to see if the results are available, as it has been over two weeks. As it's not long to wait for your appointment, then either way hopefully you will have the opportunity to find out more and talk things through before long.

    I hope you get the information you need soon, and in the meantime if others here have similar experience or thoughts to share then hopefully you'll get more replies.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Your post caught my eye as I'm having thyroid investigations at the moment. Awaiting histology result after second FNA biopsy.......

    Gosh, what a time you've had with yours.

    All I can say is wishing you all the best in the future and don't feel you'd be a nuisance chasing up results - you need to look after yourself, especially as you now have lovely toddler.