Hi Beaumont44, 

I just wanted to say we are thinking of you during this stressful time. I guess the MDT meeting was today and I hope that you get an appointment soon to find out exactly what is going on. It's completely normal to be scared when dealing with all this uncertainty at the moment and after having been through all these tests. 

Let us know what you find out - you are not alone though and many members of our community have been through this before and will hopefully come and say hello soon and share their stories with you. While you are waiting, as there is nothing harder than waiting for a diagnosis, I thought I would share with you our helpful tips to help you cope while waiting for news. 

Best wishes, 

Lucie, Cancer Chat Moderator

Thankyou for your response , nothing today but hoping a phonecall in the morning x

My hair is a weird one I don't know what's going off with it ! But that was before the cancer! It was growing at one side everyone is baffled with it , I've been for it cut today had quite a bit cut off and it's def alot thiner than it was , but I can't put it down to the treatment xx

Ok my daughter has gone to a shorter Bob style, she has my genes thick hair.  Her hair has definitely thinned out.  You can now relax and think about Christmas with your family xx

Yeah I've always had long thicker hair , I asked the doctor when I got first diagnosed if my hair thinning could be the onset of cancer like a trauma type thing but they said no ..so I really don't know, but the chemo I had I wasn't supposed to lose hair but it does say can cause thinning , yeah I'm going to try chill now , i will let you know when I get appt for results , let me know how your daughter gets on with the next chemo ..lots of love xx

Yes chill, I will let you know how she gets on next week.  Lots of love, enjoy your weekend xx

Good morning, just a quick one to say hope all goes well with the next chemo today..lots of love xx

Thank you, my daughter has her date for scans thd 20th January, feel anxious about that, as I am sure you were also? Xx

Morning yeah it's the waiting again for results and next step ...consultant is ringing me at 11 but its just the usual phone call to see how I'm doing , il ask if any date yet for results xx

Hi Beverly 39, how are you? I am having a picc line fitted in my arm tomorrow morning. I will finally start chemotherapy next Thursday 19th December just in time for Christmas. I know it will be difficult at times but I will stay as fit as I can and eat as healthy as possible. The worst thing is the weather scotland is always really cold in winter but I will just have to wrap up warm for my walks. Where are you now with your treatment? Take care.

Willow6 xx

Hi Willow6 it’s nice to hear from you. I’m pleased you have a date to start your chemo. I had a picc line inserted for my chemo and it wasn’t too bad. I think I felt better once the treatment started. You’re absolutely right to eat as well as you can and also get as many calories in you as possible. I found drinking lots of fluids helped me through chemo and fortunately I didn’t have any sickness just some numb fingers and toes which doesn’t help when it’s cold. 
im sort of in limbo now. I’ve had a couple more scans but they are to do with my kidney function after having a stent out. I just assume I will be called back re the cancer after a year. There’s not a great deal of after care/infromation information in this area but if found my stomach nurses really helpful. 
I hope your treatment goes well next week and you manage to have a peaceful Christmas. Stay in touch, I’ll be thinking of you. Take care 

Beverley39

Consultant rang me me with my results its all positive the chemo worked well and it's shrunk well ..so il get a letter now with date for surgery xx

Consultant rang me me with my results its all positive the chemo worked well and it's shrunk well ..so il get a letter now with date for surgery xx

Oh wow that is amazing I am so happy for you I am actually crying for you.  That’s such good news.  Lots of love xxx

Aww thankyou I didn't expect results so quick it's another step closer ..iv been discharged now and just under my own hospital now so that's good too , il let you know when I get op date ..lots of love xx

That’s really quick yiu must be so relieved.  Please stay in touch.  Thinking if you xxx

Good morning how are you and your daughter doing? My appt got changed to tomorrow at 10.30, im really anxious now as I know I can't put the stoma out of my mind anymore , I've tried to forget about it and noone spoke to me about it so I'm just googling and getting myself down about it , see what tomorrow brings...same as usual no choice sending love xxx

Morning yes we are ok.  My daughter has no chemo now till the 27 December.  Yes I understand you being anxious I am also about the stoma bag, scares me ti be honest.  Please let me know how things go xx

Hi there, did they tell you before your chemo that when you have your surgery there may be a chance you could need a stoma bag? It doesn’t always happen but if it does it may only be temporary. I know it is really worrying before appointments but try and stay positive you have come this far with great results. I have my pre chemotherapy assessment tomorrow and then chemotherapy on Thursday morning. I am the same feeling so anxious because I have been reading about all the side effects that I could possibly get. But I know I need to get through this to then have the surgery. Thinking of you.xx

Hi yeah there was talk of stoma but at the time I hadn't started chemo so I didn't want to think that far ahead, just thought get through chemo then deal with what comes next , I sort of think it's a definite with it being rectal cancer , yeah I've read about reversal too , im sure all will become more clear tomorrow , I had chemo through i.v. for 2 hrs then 2 wks of capecitabine tabs then a week off , it wasn't as bad as I imagined it would be neuropathy and taking the tablets was the worst part for me , what chemo are you having ? I hope all goes well for you , I do tend to read on here that nothing is as bad as the waiting, hopefully you will feel less anxious when you get going , I know I def did ..sending love xx

I am having Oxaliplatin and Folinic acid. I had a picc line fitted last Thursday and will have an infusion started at hospital for between 2-4hrs then I can go home and the infusion will run for 48 hrs then then the district nurse will come in on Saturday and disconnect it. This will happen every two weeks for three months. Hopefully by then the tumour has shrunk enough to be removed, if not they said I will have 1 week old 5 ten minute sessions of radiotherapy but only if needed. Then surgery for bowel tumour and I will need a second operation for a tiny spot on my liver to be resectioned. I will have to get the second operation in Edinburgh royal as the liver specialists are there.So if I need to have a temporary stoma and if it saves my life then I would do anything. The list of side effects of the chemo that the oncologist told me about were scary. Please let me know how you get on tomorrow. Sending you hugs xxx

Hi my daughter is having the same treatment as you.  She has 6 in total, 2 more to go.  Scans on the 20 January, line you if the tumour has not shrunk enough then radiotherapy. My daughter is only 26 x

That is so young and she has a little girl, that must be so difficult for her. I’m sure with you being there with her through all of this will keep her strong and positive. I think we all must stay positive as this is what will get us through it. I am dreading the chemo but it need to be done. I think when the oncologist said I was high risk because of brain aneurysms and atrial fibrillation and one of the side effects is blood clots. But I don’t want to think of what if and keep focused that the treatment will work. How is your daughter with treatment so far? Thinking of you and your daughter. xx