I think I've got brain cancer, but don't know how to ask the GP for confirmation

Sounds daft, but at Christmas I was diagnosed with autoimmune encephalitis,  which has a strong association with ovarian cancer. When they did the scan, they said they couldn't complete it because of my tremor. Following this I has another mri of my abdomen which they couldn't complete because a part of the equipment was broken. I've got brittle bones and am on the once weekly drug for this.

This obvs doesn't conclude anything except an overactive imagination. But added to this my eyesight is failing daily, along with my cognition and ability to type, remember things, tslk, I feel nauseas every day, and wobbly on my feet. I've also had hallucinations, but nit only me my dog too looked at my kitchen, empty doorway snd started growling.

When I was walking Simon the Staffie last week in the dark someone came up behind us, I saw his shadow distinctly, so i moved over to let him by I'm very slow on my feet now, but when I turned there wasn't anybody there, and I felt the total creeps.

Primarily tho my main problem is that I just fall asleep anywhere... when making the bed, at the dinner table, in front of the tv. And I dream the oddest of dreams, they're very accurate but totally outlandish, they make me feel like I'm in another world entirely and have totally no recollection for this current world I'm in.

Finally, I have no knowledge of where I am. I used to be able to navigate a car by the position if the sun and fall of trees shadows, literally... I could sense, or smell the right direction for really long distances just by the width of the roads, or number if cars in.s direction and time of day (that ones a useful one to remember ) but now as I wake up I have no idea what ways out, whst my garden looks like, where my flat is, what town I live in. I'm generally confused, I'm missing loads out of this bug I know it's because of my memory problems ...

Oh yes, also I used to work on loads if IT systems,  but I'm unable to even understand copy and paste now coz it's more than one instruction at a time. My last job at HSBC were really good they tried really hard yo make allowances but in the end I just couldn't understand the computers.

But the main problem, along with a worsening tinnitus in my left ear and two dents in the middle of my forehead just in my hairline is a pounding headache which doesn't improve with paracetamol or tramadol which I take for arthritis.

Also my eyes go double, like they're being twisted and I've got gaps in my vision, that mean I honestly can't read thst well and if I read more than z couple of sentences it makes my head pound even more.

Always apologies for going on... it msy well be that this isn't cancer, but with the problem.i had at Christmas in hsd 4 Lumbar punctures under xray due to  scoliosis of my spine, snd no way in... non of the procedures were difficult for me, I gad a technician, nurse and two consultant anaesthetics try to give me lumber anesthetic for a hip replacement,  none if them could get it in but they all gave it a good go... and I didn't complain once, do I'm no stranger to pain... I've been cycling (electric bike) on a broken knee since May and cope with the 2 lumps of bone/cartledge floating around my knee cap to this day, so pain isn't a problem.

The trouble is I don't kniw how to explain that if I've got a diagnosis of cancer I really would like to know, u need to make some arrangements and would prefer to get on top of those now.

I just need to know why everything is falling apart so spectacularly right now.... 

Any advice would be gratefully received

With kindest regards and a splendid evening to you all

BC

  • Hello Bethette

    I'm sorry to hear about all that you've been through over the past few months. It sounds like it's been a really difficult time for you and understandable that you have some concerns about the problems that you've mentioned in your post. 

    The NHS website has some information that may explain some of the symptoms you've described but I do think it's important that you contact your GP to discuss your concerns. If you don't feel able to explain all your symptoms and concerns then maybe you could write them down before the appointment. Sometimes it's easier to do this so that you don't forget things on the day. Hopefully the GP will be able to give you some reassurance about your concerns and if appropriate they may decide to refer you for further investigations. 

    If you think it may help to chat things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. 

    Best wishes, 
    Jenn
    Cancer Chat moderator