Waiting on breast biopsy results - heads a mess

Hello everyone.

Ive never really posted on anything like this before but I just feel so lost and scared right now I thought Id see if there is anyone else out there feeling the same. 
Im 36, beautiful son and hubby. Couple of weeks ago was doing my fake tan, noticed just the slightest of dips in my left breast (bottom outer corner). I was due on my cycle so left it a few days encase it was something related and when it didnt go I made an appointment with my GP. They couldn't feel anything but made a referral to the breast clinic based on asymmetrical breasts. 
So I head to the clinic, consultant has a feel and agrees on the dip and can feel a lump underneath it. This then leads them to book me in as urgent for the following day but for a biopsy, mammograms and so on. So I have the mammograms done, they take multiple images. Wait again to head into the consultation room with 2 student nurses, the consultant, a Ultrasound tech and a nurse. They start talking about the lump and identify another one but at this point Im a bit numb and not really taking it all in. I have the biopsies done and then the consultant speaks to me, here is where Im upset at myself as I cant remember the exact wording (my head was and is a mess) but something along the lines of “Concerned” or “Suspecting” malignancy. It was all so fast though. I had titanium chips popped in over the two lumps tested then sent back out for another mammogram to confirm their placement and booking me in for an MRI. During the last mammogram I felt so stupid, I was almost literally frozen as every muscle was so tense and I just couldn't stop trembling. The poor technician was trying to get me to relax but I just couldn’t 
I feel so lost, so scared and to be honest completely blindsided and I don't know if Im just being a big baby or if this is a normal reaction to it all. Has anyone experienced something similar and its come back as benign? Im praying it comes back benign but their reaction and way they are speaking has made me feel like they already know it’s cancer. Then I spiral thinking oh god what if its spread already? And the littlest pain anywhere is making me so paranoid.
Im so grateful to my GP and hospital for moving so quickly, the other half just feels terrified. 
Sorry for the long rambly post and thank you for reading, I just feel like Im free falling right now x

  • Thank you Winchest, I really am trying to be positive but it’s so hard, head playing games with me , hope your doing okay, this journey is awful x

  • Thank you sweetheart, we just had a lovely week in Benidorm..  haha I know your thinking omg lol, but we love it, was lucky with weather to, not mega hot but clear blue sky and able to sunbathe and get some big walks in.  Come back to freezing weather...still tired and my hands ache so much. I've bought fingerless pressure gloves off amazon and they help due to the amount of keyboard work I do. Legs ache, head itches omg bloody tablets! Spoke with breast care nurse and she said keep going with them a bit longer as it may settle. Just wish I could sleep...how are you hun where you at and how is RedRuth84? Xxx

  • Offline in reply to TM1

       I'm glad you had a good break away.  I'm sorry you are struggling on the medications.  My oncologist said the side effects reduce by 3 months after you start taking them. They are really important and they can give you other things to alleviate some of the side effects.  Alternatively I've heard acupuncture can work well if you fancy trying that? 

    I started Tamoxifen on 4th Feb. I will likely move up to an aromatase inhibitor with zoladex injections at my next appointment. I started radiotherapy on Monday and I'm just about to go to my 4th session of 20 (im getting 15 on the breast and lymph nodes and 5 booster sessions for the cancer site specifically.  Just getting through at the moment. We went out for dinner with the kids on Saturday to celebrate the end of our chemo lockdown which was lovely. 

    In good news though my hair is growing back nicely now. I was my most bald at Christmas. The back and sides have better coverage than the top. I am just trying to decide what colour it's growing back as its not too easy to tell. I am a strawberry blonde normally and darker (more auburn) under the top bit. Fingers crossed it's similar.

      I hope you are doing OK. You must be nearly at the end of your chemo? X

  •   oh lovely Im so glad you had a lovely get away, did you find the weather abroad helped with your pains at all? What tablet do they have you on? Same here Ive heard acupuncture can really help and it takes about 3 months for things to settle down. 
    Its horrible the pain is effecting your sleep as that just adds to it. Is it nerve pain your experiencing? 


       OMG reading you going out for food to celebrate the end of chemolock down makes me so happy!!! 

    How are you finding tamoxifen? Ive just had my third possibly 4th now Im thinking about it Zoladex implant. Personally found it okay, the hot flushes can be intense and my mood is a little bit down around my cycle but generally with everything considered so far Im doing alright on it. 

    Thats awesome news on your hair!! How many weeks post chemo did it start to show? My head is fluffy, its not proper hair but like this white almost felt feeling fluff all over my head. I look like a sweet that fell on the carpet lol! 

    Ive got 2 chemo sessions left, 1 this Friday!! So far Ive found Paclitaxel easier going than EC but sweet Jesus when the pains kick in its wild! Luckily they only last 2-3 days then Im alright. 
    Waiting to hear back if Il be having radiotherapy as Im in a bit of a grey area for that too but if its offered Im going to take it.

    Sending you both lots of love! Its when I visit this chat I see how far we have come. Stay strong lovelies xxxx

  • I'm finding tamoxifen ok so far. I had it got 6 weeks before my operation too. 

    My hair started growing back around New Year. Like yours, its fuzzy all over now. It's definitely thinner on top. But it does seem to be growing quickly. It looks darker than it was. We shall see.  Your words conjure quite a picture which made me laugh! 

    Yes the taxols are hard for pain. I suffered with that on docetaxel. But only 2 more to go! Treatment marches on! It's quite a feeling finishing chemo!  Stay strong  xx

  •   Glad your doing well on Tamoxifen! From what I can gather the hormone therapies arent easy drugs but still the majority get along with them fine its just a case of letting them settle.  How are you feeling about the op lovely?


    Its weirdly exciting seeing hair come back isnt it!! I cant wait to just look like I gave myself a questionable pixie cut and ditch the wigs. Ive got naturally dark hair and a strong widows peak so think Im going to go through a phase where I look like the wee lad from the Munsters. 

    To speedy ends to Chemo and Radiotherapy and onwards to funky hair do’s and grabbing lifes danglies!! Xx

  • Offline in reply to Rambleon88

    Hi Ladies    yes being away made such a difference I felt normal again but this weekend omg so lethargic and tired and I think I've got an infection, had a cold and for first time in a long time what I was blowing out my nose...yuk! Will attempt to get a doctors appointment.....my hands are worse..clicking thumb which I've no idea where that came from and is painful. To add as well waking with a dry mouth like sandpaper....so fed up but reading about you lovely Ladies omg your doing so well and truly my arms are wrapped around you both. So happy that your hair is beginning to show signs of growth. Made me giggle the 'sweet' comment. It's late and I'm in bed, but I'll jump on soon.   Keep going and you've given me strength to...I'll look into acupuncture to xx

  • Offline in reply to TM1

       Oh lovely, I wonder if maybe the heat helped with your hands? Its surprising how many people who have gone through treatment end up selling up and emigrating to warmer climates. Hope you dont have an infection :-( its that time of year where so many bugs are flying around. For sandpaper mouth I found these little lozenges from superdrug which treat mouth ulcers really good, they taste grim but are really good at soothing your mouth. 
    Im in an odd spot with my work at the moment and  going to likely have to seek legal advice which I really didnt want to do. Im off on sick right now though as between the taxel pain and work stress it was an awful combo. Definitely check out acupuncture lovely its supposed to be really good, same as hydrotherapy that has a reputation for being really good for pain/nerve pain. Xxx

  • Offline in reply to TM1

    Hi TMI,

    I'm sorry to hear about your dry mouth. My GP prescribes Salivix spray for this. It is a pleasant peppermint flavour and does help for a short while. Salivix also make gummy pastilles, but I didn't find these as effective.

    Jolamine xx

  • Offline in reply to Rambleon88

    Hi hun, ended up at Doctors, mind you was a right pain trying to get appointment! Rang 8am Monday, it was ringing until 8.14am to be told all appointments gone and suggested I ring 111....so I dam well did, was so annoying. Thru answered almost immediately and after a few questions I got a telephone appointment for next day between 10.30am and 10.45am...ok not great but better than nothing. Tuesday morning at 8.35am Doctors ring me....suddenly I get an appointment for 4.20pm, perfect as I won't have to drive up and down the motorway to go back to work, I'll go home after appointment. Lovely young doctor and had a good chat, soooo I've definitely got a chest infection so antibiotics now for 5 days and she was pleased with the vitamins I'm already taking but said get multi vitamins with iron and calcium in, so off to chemist I went and got sorted. Dry mouth and clicky thumb (well that could be start of RSI - Repetative Strain Injury) are side effects of Letrozole. Once my DX results come in then they'll prescribe calcium tablets. Was reading today that Tumeric tablets are good for bones, so ordered them lol. 

    Hmm your work hun...definitely get legal advice even speak with ACAS as we are classed as having a disability now so they can't just get rid or make life more difficult for you....I know work stress had a massive run in with boss before I went on holiday. I think she was having her own breakdown at the time but I had no sympathy for her...gave as good as I got, it wasn't even work related and I cried all afternoon....I told Doctor to...she said OMG you don't need it, been through all this and no support....

    Anyway, I feel better today apart from yawning all day nearly today sp hopefully antibiotics will kick in and I get better....how much more treatment have you got left? Your doing fantastic by sounds of it....hugs xxx