Waiting on breast biopsy results - heads a mess

Hello everyone.

Ive never really posted on anything like this before but I just feel so lost and scared right now I thought Id see if there is anyone else out there feeling the same. 
Im 36, beautiful son and hubby. Couple of weeks ago was doing my fake tan, noticed just the slightest of dips in my left breast (bottom outer corner). I was due on my cycle so left it a few days encase it was something related and when it didnt go I made an appointment with my GP. They couldn't feel anything but made a referral to the breast clinic based on asymmetrical breasts. 
So I head to the clinic, consultant has a feel and agrees on the dip and can feel a lump underneath it. This then leads them to book me in as urgent for the following day but for a biopsy, mammograms and so on. So I have the mammograms done, they take multiple images. Wait again to head into the consultation room with 2 student nurses, the consultant, a Ultrasound tech and a nurse. They start talking about the lump and identify another one but at this point Im a bit numb and not really taking it all in. I have the biopsies done and then the consultant speaks to me, here is where Im upset at myself as I cant remember the exact wording (my head was and is a mess) but something along the lines of “Concerned” or “Suspecting” malignancy. It was all so fast though. I had titanium chips popped in over the two lumps tested then sent back out for another mammogram to confirm their placement and booking me in for an MRI. During the last mammogram I felt so stupid, I was almost literally frozen as every muscle was so tense and I just couldn't stop trembling. The poor technician was trying to get me to relax but I just couldn’t 
I feel so lost, so scared and to be honest completely blindsided and I don't know if Im just being a big baby or if this is a normal reaction to it all. Has anyone experienced something similar and its come back as benign? Im praying it comes back benign but their reaction and way they are speaking has made me feel like they already know it’s cancer. Then I spiral thinking oh god what if its spread already? And the littlest pain anywhere is making me so paranoid.
Im so grateful to my GP and hospital for moving so quickly, the other half just feels terrified. 
Sorry for the long rambly post and thank you for reading, I just feel like Im free falling right now x

Parents
  • Remember you can deal with what you know. Sending strength x

  • Hi hun m, how are you? I went for a big walk earlier, certainly took it out of me, arm was in pain, ended up having a power nap! Xxx

  • Hello lovely!! Fab you got out and about hon, I find getting out for a good walk so positive to my frame of mind. How are you feeling now? 
    Im a bit more sore today but managing well thank you hon and doing my exercises. My arm and chest feel tight but Im no where near as bruised or swollen as I thought Id be. Xxxx

  • Oooohhh glad the brusing is better than you thought. I feel shattered to be honest and keep getting waves of emotion come over me....my chest was tight to and I've got a cough. Ready for pain killers at the moment. Didn't sleep well at all last night, ended up getting up and making a brew. I'm actually yawning my head off lol...xx

  • Oh lovely how are you feeling today? 
    Its a hugely emotional time/process, feeling physically and emotionally shattered I think is normal and expected considering everything your going through. Sleep wise how are you managing? do you sleep upright or on your back? Normally I sleep on my side curled into a ball but I managed a good night last night laying on my sofa with my head/upper chest propped up on the arm rest. Hope your feeling better today lovely xxxx

  • Hey, I'm feeling OK although was up again at 4am! Went back at 5am and woke up at 10.15 am...omg lol. It's like a pulling sensation going on, just near my arm pit.  Time I suppose. Can't believe it's a week ago, that's gone quick. Suns shining here, quite warm to but gosh it's windy.  Good idea sleeping on sofa, if I end up getting up again I'll do that..I'm same usually on my side and curled up, still put the cushion under my arm for comfort. Think I'll try and take my dog out for a walk in a bit on the field nearby, on a long lead so he's not pulling me.. .how are you feeling hun? Xxx

  • I'm glad you are both generally doing OK.  Take it easy if you can. 

    I have been chasing daily since Wednesday and I now finally have an oncology appointment on 16th September. It seems that if I hadn't been chasing I would still be waiting! I'm fuming at their nonchalant attitude however I'm glad I've not got an appointment. I feel like I'm catching up a bit with the time I've lost due to their massive issue.

    I hope you both have a peaceful weekend.   Xx

  • Can't believe you've had to do all the chasing, so annoying and frustrating to...hope you have a relaxing weekend to...xx

  • Oh lovely this must have been so so annoying!!  Relieved you have the appointment but gosh you shouldn't have to be chasing things down yourself! 
      hope your dog walk went well, Ive got three schnauzers who Im not braving walking yet! Ones a lot smaller than the other two so will try and walk him first I think.

    Have a lovely weekend both xxxx

  • Morning, how are you doing? I'm getting pressureed to go back to work from the boss! Got a text, yes a bloody text, on Tuesday basically saying how was physio (that wax Monday), thought you have been in today following that.....I couldn't believe what I was reading and so upset. I'm just over a week from surgery and still getting pain in my arm, still doing my exercises 3 times a day. I phoned my breast care nurse, she couldn't believe what I was telling her. I rang one of the bosses and well I felt he didn't believe me, think my only bonus was the fact I can't drive yet anyway as I won't be insured because I've had surgery and my arm is restricted. I have an office job with a lot of keyboard work and like I've been told, repetitive hands on work at this moment in time will not help my recovery....I'm just so down at the moment and worrying when I should be concentrating on getting better! Xx

  • Morning lovely!! Im alright hanging on in there. Some people just dont have a clue!! Please do not be pressured into going back before YOU are ready, Its so insensitive of them to assume anything let alone assuming you’d just be back right as rain considering everything you have been through. How are you feeling lovely? Hope your recovery is going well, rest up and look after yourself xxxx

Reply
  • Morning lovely!! Im alright hanging on in there. Some people just dont have a clue!! Please do not be pressured into going back before YOU are ready, Its so insensitive of them to assume anything let alone assuming you’d just be back right as rain considering everything you have been through. How are you feeling lovely? Hope your recovery is going well, rest up and look after yourself xxxx

Children
  • I'm OK I suppose but like I said spending time worrying. It knocked me sideways that's for sure. I've had tons of get well messages and window sill looks like a florist at the moment BUT nothing from work, not even a get well card (not that I'm desperate for one) but there's no support whatsoever. Didn't sleep well last night, some nights better than others. Glad you are hanging in there to, it's not easy is it....gonna go and make myself look half decent lol xxxx

  • Oh lovely dont give them second though in your work and definitely dont let them make you feel like you have to be back before your ready.  is spot on, treatment plans can change and your better off in the long run taking the time you need than going back then taking time off again. Im lucky my work has been understanding but then my workplace is so unstable Im not even sure if I have much of a job to go back to! Xx

  • Hi just read your post and I find it unbelievable that they are trying to get you back into work so soon and no caring attitude or empathy ,even when I had a knee replacement the time off was supposed to be 2 weeks to 12 weeks ,I was actually off 20 weeks because everyone heals differently and only you can say how long you need ,its a shame you don't have an occupational therapist  because they would have helped, they helped me lots when they started getting on my case , it takes as long as it takes for you physically and emotionally as well , don't be rushed its your health .

  • Hi Jenny, you are so right! Everyone is different, no one knows until they are in this situation. I certainly don't want to be rushed x

  • Hi, how are you doing? I've been off all week and planned to go back to work from Monday...still getting nerve pain which has been horrible at times..  got appointment at my doctors in a bit, see what he says...xx

  • Hello lovely!! Awe hon have they given you anything for the nerve pain? Hope your feeling better soon, what yourself and all of us have gone through is a big deal physically and emotionally, I know you have mentioned your employer arent the most empathetic bunch to say the least, if you can in any way avoid it please dont feel pressured to go back until your ready! 

    Im doing okay and healing well, had my post surgical meeting today and my bandages off. Big long scar but its neat and tidy and healed up well. I had my pathology in, the 5 sentinel LN my surgeon took during surgery all came back negative!! It came back as stage 2a, grade 2. The Oncologist on my MDT feels I should have chemotherapy due to my age so waiting to have a meeting with them to discuss it further and see what they think, because Im medically in a grey area in terms of true benefit of chemo they have put the ball in my court but I think Im leaning towards it. After chemo its tamoxifen for 10 years then. Xxx

  • Hi hun, been Doctors and definitely have nerve pain so I've got amitriptolene to take each night and see how I get on, very understanding doctor to. I k ow what you mean about work but last week I was asked for sick noes so I know I'm only getting SSP and well...that won't pay the bills!! Doctor said if I can't manage then she's happy to give me another sick note...I can only try...this shooting pain in my arm pit, omg and when my arm is by my side it feels like it's sticking to me...its hard to describe. I'm pleased you are healing well hun, my scar area is so numb to touch still. If you think chemo will help then it's your decision, I've still got to wait for final results and will no doubt be on my next appointment and any tablets which no doubt will be same for me..  I've had to say a few times to people that even though they've removed the tumour doesn't mean I'm OK! Think some need reminding of that, in my head I'm definitely not but I know I've got to deal with it best I can, my mind my body etc. Just like yourself. Getting the dressing off was a big thing for me and coming to terms with the scar, but then I think of you hun, much more than a scar taken away and then guilt gets hold of me...that's not anything bad towards you at all, I'm grateful mine was where it was at when it was found thank God but we all in this together and that means so much to me. You have come a long way since you first posted, like I have.  Only we know what it's like.. I'm happy you are hun...hope you have a lovely weekend luv T xxx

  • Hi Rambleon I'm glad you've had good news from the surgery. That's really good.

    Have a good chat with the oncologist. Chemo is scary. I had my meeting with the oncologist but my benefit with chemo is 15% so definitely worth it after the 59/100 on the oncotyping result and definitely recommend for me. Plus tamoxifen, aromatase inhibitors and likely bisphosphonates. I just wish they'd sent me straight for chemo rather than do oncotyping. The oncologist was suprised the other hospital did that test given my tumour was Grade 3. It's just delayed everything a month or so.  

    However the list of health impacts is really scary.  I just view it as a necessary evil. Xx

  • I'm wondering if I have this now too as since the holiday I've been getting pains on and off. 

    Coming to terms with the scar is a big step forward. Every step forward is important here I feel. 

    I start chemo on 1 October, the day after my 40th birthday.  I just want to get on with treatment now. Xx

  • Thank you lovely. 
    Its weird right now as its almost like I wont let myself believe the good news at the moment. 
    my surgeon has been fantastic but said he was taken aback by the suggestion of chemo by the oncologist. I feel like now preventative chemo has been put on the table though Il always wonder what if if I don't do it. Scary though. I hope you get on alright with it lovely. Im here if you ever need a vent xxxx