Waiting for Biopsy results - Womb/Uterine

I am a first time poster.  I went for a Hysterectomy on Thursday.  I had a ultrasound including an internal in March and was advised my uterus was showing as 30mm they said at the time they would fast track me but I have been on a 22 week waiting list until the end of last month when my GP asked for a fast track again and so had my appointment this week (it was 20 weeks since my initial scan).  After Thursdays procedure the Consultant brought me into the office and said he had serious concerns about what he saw.  When I said "it is Uterine cancer isn't it" he said "I have serious concerns, I am fast tracking your biopsy".  I have significant pain in the area which spasms at times on the left side.  My feet are very swollen ankles and top of my feet I am unsure if this is related.  

As you can imagine I am in bits, I cannot sleep, do not want to eat and do not know what to do with myself.  I am trying to stay calm but it is so hard.   When I first heard what he said I was somewhat relieved, I have always feared that people were putting me to the bottom of the pile and considered me a time waster or a hypochondriac, for months before my initial scan I had been bounced from blood test to Iron tablets back to blood tests and even been told I should go on anti-depressants because my excessive tiredness was probably as a result of depression. 

I suppose I am just wanting to ask others, when you were fast tracked how long did it take to get your results? he said no more than two weeks but he did say he was fast tracking.  But also just want to get this out, it is hard waiting, it could well be it is an easy fix problem but his face kind of said it all. 

Parents
  • hi, i know you posted 7 months ago but i am in same position and awaiting hysteroctomy biopsy in march. i too have cramping left side and one small spot blood.i do hope everything turned out well for you but would be glad to learn of your experience as i am so scared.xx

  • Hi Lola, I am sorry you are going through this. It's a very scary time. I just wanted to know what I was dealing with, it was the not knowing that was difficult. Funnily enough once I was told cancer then it was right, what's going to happen and how is it going to be sorted... and it was sorted by the hysterectomy and no further treatment needed... it's hard to believe I am nearing a year since it all started... try to stay positive,  the NHS are incredible and have seen these cancers many many times and know exactly how to deal with them... please keep in touch and happy to answer any questions you may have xx

  • Thank you for your kind words and so happy everything turned out good for you. Its the fear of the unknown for sure, I keep thinking ive missed something and its my fault my lining is 14mm, and its cancer and its spread everywhere, just awful thoughts. I was waking up panic stricken. I have my hysteroscopy 19th March and seems so long away. Im in scotland.  Th waiting and wondering is awful but I am trying to keep busy and keep off Dr Google. I keep looking for someone with same symptoms to say it wasn't cancer but something else. and I have yet to see this. I am 60 and the fear is awful xx

Reply
  • Thank you for your kind words and so happy everything turned out good for you. Its the fear of the unknown for sure, I keep thinking ive missed something and its my fault my lining is 14mm, and its cancer and its spread everywhere, just awful thoughts. I was waking up panic stricken. I have my hysteroscopy 19th March and seems so long away. Im in scotland.  Th waiting and wondering is awful but I am trying to keep busy and keep off Dr Google. I keep looking for someone with same symptoms to say it wasn't cancer but something else. and I have yet to see this. I am 60 and the fear is awful xx

Children
  • How do you feel generally? Other than the bleeding and stomach aches i felt fine..  we always think the worst... the few weeks that I was waiting for a diagnosis I sorted my will out and put everything in order.. I was so organised. I needed to be practical..  there are some very good websites to get information.. but you can also get too much info.. it does seem a  long time to wait.. have you challenged the wait? In England we have the 2 week pathway for anything they consider is urgent. Perhaps have a word with your doctor?  X

  • I feel ok, some nights i have some hot flushes, i think the cramping on one side is the bit that gets me panicking , Not had much sleep in weeks which is not helping.  scotland has 6-8 week waiting time so still within that time frame.  Did you have the hysteroscopy under General? x

  • I did have a general... was told cervix was clear but a sample of womb was taken.. results were about 2 weeks later.. then I had to have CT scan and an MRI to check for spread... there's no escaping the feelings of dread while waiting... Still shudder thinking about it... try to remain positive and get out and about, Scotland is beautiful... x

  • Thank you. I'm trying to keep busy and it does help. Just wish I could get the biopsy quicker. Hopefully a cancellation might arise . Fingers crossed. Really appreciate you taking time to answer my questions. I feel very much alone. Xxx

  • Feel free to contact mw if you want to offload x

  • Thank you. My fear is if it's cancer it's spread and I'm done . My biggest fear. I feel stupid cuz not even had my biopsy !. I think my pain in left side is making me think the worst tbh. Thank you for your help x

  • My friend went through this a few months ago and it wasn't cancer!!!  Lots of other conditions that it can be...  Even the strongest and most positive of people would feel and act the same while waiting... BUT having been through this and come out the other end a much stronger person for it..  My life is very different now with the regular checks etc...  But every time I have a twinge or pain my thoughts go straight to cancer!!  But so many people are cured from cancer now... 

  • Yes you are right and I keep telling myself this . I need to start and think positive . Thank you xx

  • Hi. Just seen your post & im a similar age to you. I’m waiting for my ultrasound which is tomorrow & I’m an absolute wreck. I live alone, can’t eat or sleep, I just can’t stop thinking it’s going to be a death sentence as my mum died of womb cancer at a similar age to me. Will I get the ultrasound results straight away or do you have to wait? I really wish I’d never r gone to the Drs in the first place as I felt fit as a fiddle. I had one bleed which was for around 15 minutes a week ago. I do t want to know but doing this for my son . Any info would be greatly appreciated.

  • Hi Tracy, They don't tell you anything at Ultrasound and you have to wait for the results which take about 2 weeks. The waiting is just awful and once I was told my womb was 14mm instead of a normal 4mm , Fear set in.The consultant said not to worry and it will be fixed if worst scenario.  I didn't sleep much for the first 2 weeks after results. Fear and worry but tbh making myself ill will not change anything sadly.  I have an appointment for hysteroscopy 16th February  as I am going for a General which added a bit of time on but I felt after reading some reviews I would be better off going this route. My pre op is this wednesday so I am getting there.

    I have lower left side cramps which is making me feel even more anxious . Again worrying aint going to change anything. If I can give you one tip, please don't go on Dr Google as I did and i was panic striken, if there is anyway you can private message me in FB then please do. or private message me here? if possible. x