Sorry stupid autocorrect that should of read Hysteroscopy 

Hi Mandabee123

What a long wait for the call back. I don't know if different regions have longer waits? I was diagnosed with womb cancer in May after suffering from bleeding. I got my results back in 1 week confirming the cancer via a biopsy.. When I was referred to gynaecology I was put on a 2 week pathway and each step was very quick.

I had my hysterectomy early June.. 

I also had a thickening of the womb lining but it had not progressed beyond.

There's no getting away from the fact that it is a scary time just waiting but you've had an exceptional long wait.. 

At least you are now moving in the system..

Please keep in touch x

Thank you so much for your kind response.  It is comforting hearing that you were diagnosed and had your treatment so close after your diagnosis so hopefully now I have had a good Consultant and he has shown concern it will move faster.  I hope you do not mind me asking (and of course it is fine if you do not want to share) but did you get an MRI after your biopsy to determine if it had spread? Yes I think there was a serious error in my referral from the ultrasound scan, it should of been fast tracked and for the life of me I do not know why it wasn't.  

Yes, once cancer had been confirmed I was called for an MRI and CT scan all within a week of the diagnosis.

The MRI was looking at my womb and CT for the rest of my body, obviously looking further afield for anything suspicious.

My consultant then explained exactly where the cancer was, even drew a picture, and explained the operation.

I can't fault my doctor and local NHS service but it is shocking that you've had such a long wait.

X

Oh thanks so much for the reply.  I have had a lot of MRI's in the past mainly for a Meningioma brain tumour I had partially removed five years ago (benign but in a bad place).  I know it sounds nuts but I wanted to see if they would do "whole body" MRI or just where the problem is as I was kind of hoping if I had to have one for this it would be feet first :) wishful thinking! but it makes sense they need to know if it has spread.  I think he must of taken biopsy in a few places... I didn't ask at the time but I am pretty sore so he must be doing Biopsy inside the Uterus and outside to check.  He seemed pretty worried so I am really hoping it is just in the uterus if it is. 

Morning, they should check the whole body. It's good you're used to having an MRI. I took one look at it and wanted to walk out. It's so intimidating.

The CT scan was more manageable and a lot quicker. They do need the information from both these scans so they have the whole picture.

All I knew about my biopsy was a sample was taken of my womb lining. The consultant checked my cervix but it was during my operation that samples were taken of my cervix (smear), and lymph nodes were checked/ tested during the hysterectomy. 

What helped me during this time while waiting for results, was getting out of the house and long walks.

I also listen to books which helped.

And many people told me not to look at Dr Google.. best to stay away if you can.

Of course, Cancer Research and NHS are good sources of information..

Try to have a relaxing Sunday xx

Thank you so much.  You do not know how much you have helped.  I am going out today to get away from the house (and the internet) I agree it is best not to google.  I googled 5 months ago when the lining was recorded at 30mm to know what potentially that could mean.  If the results come back with cancer I think I will have some questions to ask as to why it was not fast tracked, if my GP had not chased it on the 28th June they would not of booked me in for the 18th of July two days later that I am sure.. I was treated as a low risk case by someone.  Yes CT scans are like photocopiers quick zip zip and done I love them! MRI is ALWAYS best in my opinion if you close your eyes before getting in and not re-open them til it's done.   I was having a very bad day yesterday but chatting to you has really helped. 

Thanks so much for your response and I know exactly how you feel.  I spoke to my Brother today who told me all about three of his friends who had cancer and it spread to their lymph nodes... helpful! :) it is good to get out of the house though it helps by not in your own head all day which happens at home.  I am more than happy to share and relate on here it is great support knowing we are all in the same boat.  I so wish I had known that this should of been fast tracked months ago but now we just have to deal with the results and what happens then and hope that delay has not made things harder... fingers crossed! (for all of us struggling with the wait right now). 

Regarding the wait, I would, at the very least, expect your doc / consultant to investigate the delay and for lessons to be learnt. But for now, and for you, just concentrate on yourself and the next steps.

Please keep in touch x