Gynaecological Cancer?

Hi,

If you're taking the time to read this, thank you! And even if I don't get any replies, there's no harm in trying!! :) I think I just need to get everything off of my chest.

I've been having really weird symptoms for 2-3 years now. Every year it seems to be getting worse. It mainly consists of abnormal clear discharge everyday, bloody discharge around 1-2 times every week (sometimes its brown, most of the time its bright red), pain and itchiness on the vulva and deep inside the vagina. This all went on for 3 years. I'm 20 now so I know it's a very low chance of cancer, and have never been sexually active. In the past year (since August) I started to have chronic pains that "feels like a uti" - I was treated for UTIs with so many different meds (which none helped), and all my urine samples all came back clear. My vaginal swabs have been coming back clear, my transabdominal scan came back clear (they couldn't do the other scan because I've never been sexually active), I was seen by 1 dermatologist and 3 gynaecologists (all discharged because they "couldn't help me further"), I was given penicillin, different antibiotics, so many different steroid creams. I was seen by so many doctors and GPs.

The "urethra/UTI" pain wasn't so bad in the beginning (August 2023), but it's been so painful in the past few months that I feel nauseous and faint and have to take painkillers every time I leave the house. It gets especially bad when I'm active or go out for some reason. I actually rarely leave the house due to fatigue (I am seeing a chronic fatigue doctor in a week), and even dropped out of university due to all my symptoms and fatigue. My blood work is also "clear", apart from a folic acid deficiency and vitamin D deficiency that I only developed in the past year.


Very recently (I would say in the last 3 months or so) I noticed a sort of mass inside my vagina. It feels like a "balloon" and is quite large/bulging. My guess due to the placement of it would be either a rectocele or cyst? I'm not a doctor so I would not be able to tell. I am very hydrated and always have been, and I don't think constipation has ever been a huge issue for me so I am unsure about the possibility of it being a rectocele?

I had another GP appointment today and just asked for a gynaecological cancer referral, or somewhere that could offer me biopsies or anything since every other test came back as clear. The GP doctor agreed but I was told that there's a chance the cancer clinic may reject me??? If that happens, going to the routine gynaecologist will be delayed (as if it already doesn't take months to get an appointment). If they reject me, my plan is just to keep making urgent appointments with my GP or call 111. I can't wait months to see a gynaecologist that will just not listen to my concerns! What if it IS cancer? I can't wait for months. What else can I do? I'm so scared. I'm so tired. 


I'm not sure where else to go to or who else to speak with. So if you read all of this, thank you very much. If anyone has any words of advice or any opinion, I would also be incredibly grateful. 

  • Hello sweet4455, 

    Poor you you've done everything you can and did well to go back to the GP after noticing this mass - it sounds like the GP is taking it seriously though so fingers crossed the referral won't be rejected and that you can be seen as soon as possible. I agree that you need some definite answers and it must be exhausting for you to be dealing with so much uncertainty. 

    I hope that you will hear from other forum members who have been in a similar place before and that they will drop by and share their experiences with you. 

    Fingers crossed you will be seen by a specialist soon and that they deal with all these issues once and for all. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hi Lucie,

    Thank you!! I am relieved to say the clinic has accepted my referral. I am expecting a telephone appointment in the next 2 working days, and then a face to face will be scheduled. The hard part now is just waiting, especially over the weekend x). I'm terrified but I'm trying to stay distracted and let time pass!

    Thanks again for the response :P