Hello TheRareCase

I'm sorry to hear about your recent diagnosis of a rare cancer. It's understandable that you're feeling anxious about this news and have questions about what this means for your health in the future. 

Being diagnosed with a rare cancer often leads to lots of uncertainty for people particularly when it comes to treatment plans. It sounds as if your Consultant was confident that all the tumour was removed. It can be helpful to hold on to the positive news at times like this and not to look too far ahead into the future as this often leaves people even more worried. 

We do have some information on our website about rare cancers but you might also like to give our team of nurses a call. I know they will be happy to listen and offer any advice and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

I do hope that as you move forwards with the recommended treatment, you feel well-supported by the care teams around you. Don't be afraid to ask questions and to reach out for help if needed. 

Best wishes, 
Jenn
Cancer Chat moderator 

Hello. I have a friend who has just been diagnosed with NUT carc.  How are you doing? I hope you’re well and fighting x