I’m scared

Hi, I thought this would be the best place to get out all my worries to hopefully help my anxiety. 

I’ve had things going on now for over a year and a half with no answers and have my first neurology appointment next thursday.

it started with a strange sensation in my anus that made me itchy, I treated myself for all sorts and it was just getting worse. I have now completely lost the sensation of needing to pass a bowel movement and have to relieve myself because my sphincter doesn’t release.I get lots of back pain also. I’ve seen multiple doctors who have treated me for constipation (which isn’t the issue) piles (which isn’t the issue). I have had a colonoscopy which was normal and then told I need physio which never actually happened. Over the last few months I have developed more worrying symptoms. There’s a long list but the most concerning are constant neck pain, dull headaches and a feeling like I have a headband on constantly,  nausea, tiredness, irritability, nights sweats, random bruising, itching, random sharp pains all over my body, tingly hands & feet and tingling in my face. As you can imagine I’ve done a lot of googling over the past year a half and even more so since these other symptoms started. I have convinced myself I either have cancer, CNS lymphoma seems to match a lot of my symptoms or that they are going to tell me my spine mri I had in March was fine and I’m back to having no answers. I really struggle with not knowing.

I don’t know what I want to gain from posting this but I’m literally going out of my mind!

  • I'm really sorry to read what you have been through over the last year and a half KerryJ86. It sounds like things have been very tough, especially with these new symptoms developing over the last few months, and still not knowing the cause.

    I hope getting your thoughts out in the open has helped with your anxiety, but if you feel it may help to talk things through with one of our nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very friendly and will do all they can to support you whilst you wait. 

    We're thinking of you KerryJ86 and wishing you all the best for Thursday. We'll have our fingers crossed your neurology appointment will be able to get you a step closer to some much needed answers and peace of mind.

    Kind regards,

    Steph, Cancer Chat Moderator