Hey all, hope you don’t mind me posting this here. Need advice/discussion if that’s okay.
It makes me really uneasy but for understanding I’m going to use the word ovary. (I am transgender female to male so please be delicate)
I’m 7 years on Tesosterone (hormone replacement therapy). I had an ultrasound 4 years ago that showed slight enlargement of my right ovary, but no one said anything to me about this. I recently had a CT scan for something else and within 3/4 years I’ve now got a tumour 5.5cmx7.3cm on my right ovary (so it’s growing pretty fast). I’ve been referred to a gyno which is up to a years wait, all it says is that it’s suggestive of a dermoid cyst.
I’m having bloods done this week. as there’s a long wait for the gyno i need another ultrasound to monitor growth until then. if my cancer markers come back high then I’ll be put on the emergency cancer pathway. However my gp practice in general is abysmal and neglectful, I’m scared that my results will come back fine even tho I’m not and I’ll be left.
They said to me “it’s unlikely someone your age” and I’m sick of hearing that. My mum was the same age as me when she was fobbed off for years by the same GP practice. She was told she just had IBS and they refused to treat her, turns out she had 3 tumours, bigger than mine, stage 4 endometriosis and all her insides were stuck in the cavity of he back. they rushed her in for surgery the next day and told her they were 99.9% sure it was cancer. Because she was left so long being fobbed off by the gp she’s now disabled and has had no life and lives in chronic pain since her 30’s. Unfortunately my health seems to be mirroring hers.
My family history of cancer/PCOS/endometriosis/tumors/reproductive problems is EXTREMELY high.
I’ve been saying to my partner now for months that I’ve had changes in my bowl habits, I get this disgusting bloating if I eat it makes me feel vile, I’m tired all the time (I do have other sleep conditions tho) I have to urinate constantly, but it’s gotten worse the last 6months/year.
I have bloods booked for Thursday but I have covid and scared I’m not gonna make them where I’m so ill . I know no one can diagnose me but has anyone else had anything similar? I know a lot of cysts are benign but given my family history and other symptoms, should I maybe prepare my self a little?
