New here worried and confused

Long story but back in October last year I went to the GP with lower left sided pain in my pelvis I’ve had PCOS for years thought it could be a cyst rupturing a TV ultrasound showed a complex cyst on my left ovary 5cm in size. I was referred on cancer pathway seen by gynae consultant told there was nothing to worry about CA125 was 17 CT done and told it’s not cancer referred to Gynae.

By January the pain was worse with no sign of a general gynae appointment I paid to go private a new TV ultrasound showed the cyst has almost doubled in size presenting concerning features so another cancer pathway referral I saw a registrar last week more bloods taken my case sent to MDT I’ve now had a call to have more bloods and another CT this week. 

six months since this all started and no further forward had I not gone private I wouldn’t even be as far along as I am now,  has anybody else been through anything like this. I just want answers or at least a plan I’m in pain daily along with stressed and worried. 

  • A very warm welcome to the forum TVP although I'm really sorry to hear that your cyst has doubled in size and is showing some concerning features.

    This must be very worrying, and frustrating too now that more blood tests and another CT scan have been requested, but hopefully once these have been done you will finally be able to get some answers and a plan of action in place to deal with this cyst.

    I'm sure some of our members who have been through something like this will be along soon to offer their support and advice but if you'd like to discuss any of this with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very knowledgeable and will do all they can to help you through this very challenging and uncertain time.

    We're thinking of you TVP and will have our fingers crossed things start to move forward soon.

    Kind regards,

    Steph, Cancer Chat Moderator