Anyone experienced DCIS recurrence?

This feels like a strange deja vu as I visited these forums a lot in 2022 when I was diagnosed with a 5mm high grade DCIS. And it gave me lots of hope and information. Within 6 weeks I went from mammogram, ultrasound and biopsy to wide local incision and finally to be discharged to come back for annual mammograms. It felt like a whirlwind however I’ve felt so grateful to have “got away so lightly”. No radiotherapy, no drugs to take, minimal scar and in the first year my mammogram was clear. 

However, this year my mammogram picked up something. I didn’t find out until the biopsy that it was either a new or growing calcification. I’ve now been booked an appointment at the breast surgery clinic and I can only assume that you wouldn’t waste a consultant’s time on a patient if there’s nothing suspicious. I’m pretty devastated as I hoped I’d put this behind me. All my past worries about it becoming invasive, having a mastectomy, radiotherapy, etc and all the knock on implications on our life have flooded back. I just can’t imagine being so fortunate to have minimal treatment twice and, if this is a recurrence of DCIS, the speed of recurrence feels worryingly fast. Trying to take solace in the fact I’m forties and otherwise fit. 

So I just wondered if anyone else has been in a similar position. 

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Parents
  • A very warm welcome to the Cancer Chat community RainbowCats although I'm sorry something was found on your latest mammogram. 

    I know this must be very worrying, but if you can, try not to think the worst until you know more. Always so much easier said than done, I know, but I hope it helps to know that many of our members who have dealt with a possible cancer recurrence will definitely understand what you're going through, so you are not alone, and hopefully it won't be long until some of them offer you their support and advice.

    If it would help to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're really easy to talk to and will do all they can to answer your questions and provide you with any other information you may be seeking at this time.

    We're here for you Rainbowcats and wishing you all the best at the breast clinic surgery when the time comes.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Thanks Steph I’ll definitely give them a call when I need some support :-)

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