Scared beyond belief

18 months ago I saw my GP with a lump on my neck. He felt it and said it was probably a Lipoma. I had an Ultrasound scan on it in October 2022. The GP phoned me and said nothing to worry about, it's a Cyst and I'd get an ENT appt. I've waited 18 months nearly to get that appt in which time the lump has grown very large. I assumed they meant it was a Branchial Cleft Cyst. Anyhow had the ENT appt and evidently I should have been seen 18 months ago on the 2 week pathway !!!

I've had another Ultrasound and Biopsy 10 days ago. I've had a CT scan 4 days ago and a letter this morning with an MRI appt in 9 days time, which was originally set for the end of May.

Clearly I'm terrified that this is not just a cyst like I was told. Why would they bring the MRI scan forward by nearly a month if it wasn't. I don't think I can cope much longer with the anxiety and fear.

  • Hi Joey, I'm sorry the doctors didn't get you on the two week pathway, but I'm glad they're getting as much information as they can about your lump now. I don't think bringing the MRI appointment forward is anything other than making sure they know what it is as soon as possible after the delay you've had being treated. It doesn't mean it's not a cyst, especially if the doctor thought it was after your first CT scan, it seems to me that it just means they need all the information asap to let you know for sure, and that's a good thing. The waiting is horrible, so the sooner you know what you're dealing with the better. I'm no expert on anything except my own experiences, I'm just someone who knows the feeling of waiting for results. I can only say that I hope it is just a cyst and you can get it dealt with and get back to normal life asap. All the best to you.

  • Offline in reply to Beepa

    Thank you Beepa for taking the time to reply, I do appreciate it. It is difficult, the waiting, the not knowing what news awaits me, if I have a future. I know I'm not the only one who has to face this and I do feel selfish for thinking this way. 

    Thank you for replying.

  • Offline in reply to JoeyF

    I felt guilty too, but the Macmillan nurse I spoke to was great and assured me that it's not selfish and everyone has the right to feel whatever they feel. So take the guilt out of it and talk to someone professional who can reassure you, because they will be happy to. It's hard to not let the worry take over everything, but they really can help.