I suffered for a number of years with fibroids which have been monitored at the women’s clinic. Last apt in Jan this year said no change’s,  largest one was 6.5cm and this expected to shrink as menopause hits …so no problems I thought. In Feb I had what I thought was a uti but  lab test was negative. I go for ultrasound mid March which shows Pressure on my kidneys believed to be due to fibroids. Gp referred me back to Womens clinic who downgrade my referral to non urgent, no appointment till july.  Stunned by that I decided to see a private consultant and had mri. Result came back, the large fibroid had grown another 2.5cm &  couldn’t be ruled out as sarcoma.  ive now been referred back to nhs and  waiting for urgent mdt due on 10th. I’m absolutely distraught. At the very least i think I’ll need  a total open hysterectomy but from what I’ve read,  the prognosis for this type of aggressive cancer is extremely poor, I’m a total mess, and can’t manage to eat or sleep. Nothing that I’ve been told seems to offer any hope.  I contacted the hospital as I didnt understand the reason for MDT, they said someone will call me after mdt to update me.   I need to know but I  don’t think I’m going to cope with what they say.