Waiting to be told…

Hi, After 3 cancelled operation's, I finally had a tumour and some lymph nodes removed from my neck on Feb 6th, all along I was told the chances of them being cancerous were close to zero but a month after the op the biopsy results came back showing that both were cancerous and were secondary cancers, I was booked in for CT & MRI scans and a MDT meeting has taken place to discuss the results, this was 2 weeks ago and I’m still no closer to finding out what was discussed and if they found a primary cancer. 
My question is how long does all this take?? I naively thought once you’re told you have cancer things would move along quite quickly but this doesn’t seem to be the case, I know I’m not alone in this happening but it affects so much, it’s causing so much stress to myself and my family with the not knowing ️

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  • Welcome to the forum ParotidPaul although I'm sorry to hear the lymph nodes that were removed turned out to be cancerous and were secondary cancers.

    This must be a very stressful and nerve-racking time for you and your family but I'm glad you've reached out to us Paul as you'll find our community to be very insightful, and supportive, and I'm sure it won't be long until some of our members stop by to share their experiences and advice.

    I really do hope you get some more information soon but if you would like to talk things through with one of our cancer nurses whilst you wait, you can contact them on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and will do all they can to answer your questions and support you during this anxious time.

    We're thinking of you Paul and will have our fingers crossed you won't have to wait too much longer.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Thanks for the reply, strangely I had a call from the hospital yesterday and had an appointment today, sadly the news got worse, the scans showed multiple tumours in my right lung, neck and parotid gland, I’ve been given an oncology appointment for Monday where I hope to find out the next step.  

  • I'm glad you've finally heard back from the hospital Paul although I'm sorry to hear the news wasn't good.

    I know the next 5 days are going to be tough but I hope you can take some strength, and comfort, from knowing we are sending you all our support and will be thinking of you on Monday.

    Kind regards,

    Steph, Cancer Chat Moderator

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