Possible lymphoma based on enlarged lymph nodes

Hi everyone, I felt a pea-size lymph node in my neck a few months ago which has grown to over 3cm in 3months, and there are now more enlarged nodes around that first one (but smaller). I had an ultrasound scan and the notes say that the appearance is of malignant lymphadenopathy which might be lymphomatous or metastatic (thank you NHS app for having some of the notes!). I’m now waiting for another urgent appointment for a biopsy and CT scan.

From the notes it reads like it is lymphoma so I’m mentally preparing for that, I’m not sure how it could be anything else at this point?! I’m not sure why I’m posting but I’m keeping a lot of this to myself so I don’t worry people, and it’s hard waiting isn’t it?! Thinking of everyone who is waiting for an appointment. 

Parents
  • I had my hospital ENT appt today, and I am still non the wiser.  I have got to wait for another urgent referral for an US & biopsy on my right node as the hospital said the location of that one is what they are worried about.  Once US has been done they will then decide whether they need to biospy those or not too.   So yeah, more waiting.... 

  • They’re normally pretty quick with urgent referrals. My appointment was confirmed yesterday and my US/biopsy and CT scan are next Thurs (or at least I know I have an appointment then but I don’t know what it entails yet and assuming it’s these things based on the referral). Thinking of you, it’s so hard wanting to know everything now but take it step by step. That’s what I’m trying to do but it’s easier said than done!

  • That's good! Not too long to wait then.  I am not expecting to hear anything now until next Tuesday with the bank holiday.  I guess I just need to try and put it to the back of my mind now.  That is good that you are also getting a CT scan! You will have to let us know how it goes x 

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