Hi, I had lymphoma in my neck, the lump usually manifests itself by growing outwards but mine grew inwards, went undetected for three months having been mis-diagnosed and treated as TB and of course I grew steadily worse and admitted to hospital three times. Eventually correct diagnosis arrived at, had chemotherapy,etc. I had a recurrence 16 years later, my GP didn't agree with me said I was imagining it, but I went back two months later insistent that it was active again and she agreed to send me for an ultrasound scan. Even the Consultant Radiographer said he didn't think there was anything there, but on performing the scan admitted that I was right and treatment was instigated once again.

I think you need another talk with a GP, can you see a different one at your Surgery if you don't feel you are getting anywhere. Ask for an ultrasound scan and ask for the actual blood test results, an actual printed copy of them, you are entitled to. You need to look at the ESR and CA.125 and another blood test would be good for comparison. If they are rising then your doctor needs to think again and not rely on antibiotics. Do research on the internet, make notes of what you discover and write down questions for your doctor at an appointment and don't be afraid to ask them.

i would urge you to be calm and not be scared by this development. Our bodies are masterpieces of engineering but they do have problems that need sorting. A positive approach is really helpful and as I said look into it and read up everything you can find with your particular symptoms. You obviously feel something is going on so don't ignore it, face it. Doctors cannot know everything and sometimes need a nudge in the right direction but discretion is required so that you keep your doctor on your side! 

I hope you soon find the answer to what is yours ur medical problem.

Sorry to jump in.  Linda I just wondered where your lymphoma lump(s) displayed and what they felt like? 

I have been referred as suspected, but I have not had US yet, that is next Thursday.  

Thank you x 

Katie, that does not sound right and I hope you can get some answers soon for your own peace of mind x 

Thanks for the message, I have been back to the doctors this morning, a different doctor, she was lovely, did a thorough exam on my top half, said the lump is at 2cm but she doesn’t feel overly concerned about it as she can move it. She has referred me for a US given my other symptoms so should get an app through within the next 2 weeks, more to rule out anything nasty than confirm. She really did put my mind at ease. 

Sorry to jump in but I just wanted to say how important it is to PERSUE things.

So pleased that you got to see a different doctor and now have an ultrasound on the horizon.

Best wishes.

Hi Jessica, my symptoms presented as swellings beneath the jawline on both sides and my blood tests were all over the place. But I did not get the usual lump developing at the base of the neck where it meets the shoulder. Mine grew inwards instead, I had coughing fits, had great difficulty speaking and had to avoid certain foods - bread nearly choked me and I needed liquids like soups and stews.

Hope all goes well on Thursday.

sounds like things are moving in the right direction and you have a doctor who understands, great stuff!

Hi, how did your US go? 

my US is next Wednesday 

I had my ENT appointment on 28th, but they didnt do an US there :(

I have another appointment for an US and biopsy on my right side on 10 April, same day as yours!   I did not realise until the appointment but my thyroid is also slightly enlarged on the right side too aswell as the enlarged lymph node.  I also noticed a lump yesterday above where your adams apple would be but slighlty to the right.  I dont even know what that could be......... defo something going on somewhere x