Mood up and down like a yo yo

I'll try to be brief, on 26th Feb I had a huge mass removed along with "messy tissue" and a right ovary that was supposed to have been removed in 2009 during total Hysterectomy. Huge Laparotomy so not recovered yet. I still have another 10 days or more to get results and to be frank the whole thing has me alternating from anger to fear and back again. My Hysterectomy was because I had severe endometriosis so obviously leaving an ovary was condemning me to more of the same.  I wasted weeks telling doctors I had no ovaries so tests took up time to find what this mass was attached to.  There's no hurry to get my results to me, no chance to talk things through and find an outlet for my anger which is unhealthy, or an explanation why my tests results are taking 4 weeks. I apologise for the tone of my post, the surgeon was brilliant, getting what she said was a mass the size of a football out in one piece and she was very understanding, sadly though she has left and I haven't been passed to anyone else, I truly feel I don't matter any more than I did in 2009 when a ticking time bomb was deliberately left inside me, and then not telling me about it.

  • Hi Millie-53,

    No need to apologise, it's what this forum is here for - to write things down and reach out to others who understand. It sounds like you've been through a lot with this and I can understand your feelings. I'm sorry to hear you've been waiting so long to get results, and I hope that it's not much longer to wait.

    When you do get them, you should have an opportunity to talk things through with the relevant doctor/specialist. You can explain how you feel, as well as asking any questions you may have - it's important that you have the opportunity to do this.

    If ever you feel you'd like to chat with one of our nurses, you are welcome to give them a call. You can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    I hope that this forum can be of some help to you, and we are always here if you need it.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Is it worth speaking to your gp and see if they can chase results? I'm sorry it's taking so long for you. Or maybe even PALS at the hospital?

  • There has to be this Multi Discipline  Team meeting first before I can have my results so GP won't be able to help with that. I asked if that would be held even if the results were negative but didn't really get an answer to that.  I can understand the difficulty of having so many available at the same time. My problem is that I now don't have a Consultant. In the first Consultation there was no mention of her leaving. It was post op when she described what she'd found and said it would be explained when the results were back but not by her as she was leaving. I didn't see her again. I had a phone call last Monday asking how I was and telling me  because of the meeting it would be 2 more weeks before I got the results.  I thought this was some kind of courtesy call and as it was someone I had met at pre op stage I opened up a bit about how I felt emotionally. This was all documented and has gone to my GP but without context it makes me seem paranoid.  There will just be a phone call to tell me the results and if there's further action I presume I'll be told then.  I don't know if this happens in other Health Authorities but its added more stress 

  • I eventually rang gynae oncology and spoke to a very helpful secretary who told me the MDT meeting had taken place and they were trying to find me a clinic slot. I wasn't expecting to go back so don't know if its a check up or because my results are positive 

  • I hope you get the appointment soon. Best of luck

  • Thank you, I really appreciate you taking the time to reply.

  • I think I'd ring everyday to see if there's a clinic slot. Hopefully it won't be long then x