Recently just had a CA125 test and results are really high 379!! Beside myself with worry waiting for my scan, can anyone give Amy reassurances or experiences please??
When diagnosed, my CA125 level was over 1,000 and the CT scan showed a complex mass of 13x13 cms on my ovaries. I had a laparotomy done to remove the ovaries, womb, tubes etc. and was told at that stage that it was stage 3 ovarian cancer and also womb cancer. Both apparently primary cancers!
I then had 6 sessions of chemo followed by 4 weeks of external and 1 week of internal radiotherapy. I only had slight discomfort during chemo and had no problem at all with the radiotherapy.
This all happened 14 years ago when I was 56 years old! and I have been fine ever since.
I’m sure things have moved even further on by now so Good Luck to you. I wish you all the best.
Thank you for your reply, definitely you have given me some hope even if it’s the worst outcome. Can I ask what symptoms you experienced? My bowels have def changed, but hubby keeps trying to reassure me it’s because I’m barely eating due to the stress of it all x
I experienced bloating, feeling full quickly and slight weight loss. I was also peeing more often and had vaginal bleeding although with hindsight the bleeding was probably as a result of the womb cancer. I had no bowel problems so your hubby is probably right. Try not to worry too much x
