Feeling upset and alone

I know this may not be cancer. I am 22 and I have been having pain on the lower left side of my abdomen for two years. I have also had rectal bleeding for two years. At the beginning, the doctors thought this was a bowel issue so I had a sigmoidoscopy and it turned out that I just had haemorrhoids.

I then had very heavy and irregular periods and my pain in that same place would get worse during my periods. I also have bleeding in between my periods. The doctors then thought I have endometriosis and I should get tested for this soon.

Recently, I had very severe pain in the same place and I stood up and fell over. I felt very sick and I had lost my appetite the week prior. I checked 111 online and I was advised to call an ambulance and they asked me to get someone to stay with me. I live with my grandma so I asked her to open the door and she did that but she freaked out and called my parents and siblings to come over. So they came aswell. My aunt who also lives there came.

I was able to talk with the pain to the paramedics but it was difficult. They took me to A&E. They referred me to the emergency gynae assessment unit. They haven’t found out what is causing the pain but the test results have been normal. They decided that I should have an ultrasound. I had this in the small hospital in my town and they were concerned about my pain and sent me back to the emergency gynae assessment unit in the big hospital in the other town.

They assessed me again and decided to give me painkillers and send me home and refer me to a pelvic pain clinic within 4 weeks. The painkillers haven’t been helping so I went back today and they assessed me again and prescribed stronger painkillers. They were concerned about my pain and gave the option to go home or stay overnight at the hospital for pain management. I chose to go home but now I wish I stayed overnight because my aunt argued with me when I came home and now I feel worse.

My aunt is sometimes like my best friend but recently I am very upset by her. She said I was stupid for calling the paramedics and she didn’t believe I was in pain and she thinks I wasted the paramedics time. She said that people in severe pain can’t talk and I said that I didn’t know that because I’m not an expert in people with pain but I found it difficult to talk but pushed myself. However, I was struggling to move and walk with the pain so I felt that is severe since I am usually able to with the pain.

She thinks I am attention seeking. She said that I don’t even have a diagnosis, yet she has stage 4 endometriosis and she is pregnant and she is able to go to work, clean etc and she thinks that I am pretending so then I don’t need to do any of that.

She said that everyone in the family thinks that I am pretending to be in pain and that she thinks some of my symptoms are real but that I also have munchausens and I am a hypochondriac. She said I must have a low pain threshold but I have been in pain for 2 years and I managed to push myself to go to uni and placement but now the pain has gotten a lot worse which is why I wasn’t able to go this week.

I am planning not to speak to anyone in my family about my health anymore as I feel like I am already going through enough and don’t need to be treated like I am faking it. I don’t usually talk about my health unless they ask so I don’t know why they would think I am attention seeking. I would love to not have any symptoms and go back to my life before I had symptoms.

  • Hi Imfeeling22,

    I'm sorry to hear about the symptoms you're having, but I hope the doctor can get to the bottom of it with further investigation. There's is some information on the NHS website about endometriosis, which might be useful before you go to your test. Don't be afraid to ask questions or note down any concerns and take them with you to your next appointment to help feel prepared and informed.

    I'm sorry to hear how your aunt is making you feel and can understand that you hesitant about talking to her about your health, but it's important for you to explain your feelings to her, if you haven't done already, especially as you're going through tests to find out what's causing you're symptoms. Everyone's experience is different, so I hope she can come to understand your point of view, as it seems like you both have a good relationship.

    All the best,

    Moderator Anastasia  

  • Thank you. I reached out to her to apologise as she had gotten upset that I didn’t stand up for her first in the argument (she had kept asking if I could get my clothes off a rack and I said yes but she carried on talking and said that I left it on for a week and that I’m not too ill to take clothes off. Then my family got angry at her saying that I’m ill and it wasn’t the first thing on my mind. She was annoyed that I didn’t speak up and then she started telling them that I’m pretending to be ill and all those mean stuff). She then apologised for her part.

    I have had the pelvic pain referral now thankfully. They think I have endometriosis but there are some symptoms that are unexplained like weight loss so they’re going to do an MRI to make sure nothing else is going on.

    I am a university student and unfortunately, the teachers at my placement have spread rumours to the teachers at the next placement I was supposed to go to and now they have both withdrawn me. :( They said it is due to unprofessional conversations but I cannot remember ever having an unprofessional conversation. The only thing unprofessional I can think of was that I was feeling ill a few days before I went to hospital and lost my appetite and I had talked about that. So they might have thought my illness was caused by not eating but on my medical note it says ‘gyn pain’ so I am sure that type of problem does not arise from not eating. 

    My university will hold a meeting with me on Wednesday, but as I feel really unwell, I asked if this could be on Teams and they said yes. It feels sad to think this is happening at the same time I’m struggling with my health. I do feel like it was rude of them to spread rumours about me when they might have known I was in hospital. I had sent them a medical note from the hospital :(