Coping with the wait!

Hi, just wondering how anyone else has been able to cope with waiting for test results.  Have been told I have cancer but waiting for biopsy results to determine whether it's lymphoma and if so what type.  The waiting is so frustrating and upsetting and I feel like I'm on an emotional rollercoaster.  I try to keep myself busy and to avoid researching - although that's quite difficult at times.  Sometimes it's hard to stop my mind wandering to worse case scenario.  I'm sure that there are lots of you in the same position and wondered if you chould share how you are dealing withi it, or just confirm that what I'm going through is perfectly normal :)

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  • I thought I would give you an update on my wait. I have been told my biopsies confirm colorectal cancer, MRI/CT show no spread, but PET Scan booked for 26/3/24. Surgical consult has advised that surgery not an option right now and awaiting an oncologist meeting but told treatment will be chemo and radiotherapy. My oncologist appointment isn’t until the 5th April, seems a while away before it all starts. It’s so hard to keep upbeat and no think about what that means. 
    Hope everyone else’s wait for treatment plans come quickly. 
    Sending prayers to all. xx

  • It's encouraging that the MRI/CT scan; doesn't show any spread of the colorectal cancer  and I am very sorry that you have it at all. 

    It's not natural to feel upbeat at a time like this but it helps that you have a PET scan next week and an  appointment with the oncologist the week after booked. Also a treatment plan (chemo and radiotherapy) outline. Perhaps surgery later?

    The main thing is that we have a fantastic NHS who will do their best to help you get through this. I'm with xxxx who are wonderful and am so thankful for them.

    Wishing you well and praying that everything works out for you.

  • Hope it all goes well tomorrow x

  • Ah, thank you for that.

    Expect to see ENT specialist in the next couple of weeks.

    They are concentrating on dealing with the lung, so, even if I need an operation on the thyroid it's likely to take place after the lung surgery.

    You started this thread and I am wondering how you are feeling now that treatment is starting. I expect you feel less anxious?

  • Yes it's seems like it's been such a long time. 26th Jan I was first told it was probably cancer and referred and today I finally got the definitive diagnosis.. I have non hodgkin lymphoma b cell high grade aggressive cancer.  The primary is on my tongue with secondary on both sides of my neck and possibly in my groin also.  Appointment with consultant this morning and an awful lot of information to take on board and then was quite shocked when they said treatment was scheduled for tomorrow.  As this is the first round there is now a certain level of different anxiety of the unknown but it is a bit more settling to have the diagnosis and to know what the next steps look like.  Fortunately I don't need surgery but am scheduled for 6 rounds of chemo with each being a 3 week cycle.  Not looking forward to the side effects but small price to pay to be able to tell my story at the end of it.  

  • You're right - it does help to have a diagnosis and treatment plan. You know where you are and where you are going which is settling.

    I hope you don't find the treatment too unpleasant and get through it with good results. Amazing that they are able to start treatment tomorrow - no messing about then. Must've taken you aback when it was first mentioned.

    You mentioned "telling your story". I like to write (eg a journal) so you've given me an idea to write mine in it's own journal. Perhaps starting with "once upon a time, over two years ago......."

  • Hi Sharza, Encouraging that your hospital team are moving fast, hope you don’t have to wait too long to see ENT. Wishing u all the best, Thanks.

  • Hi everyone, Im pleased that you are getting your treatment and my fingers are crossed for you all.....

    My husband is going into to hospital in the morning to have his tonsils out due to a tumour on his left tonsil which has grown significantly over the past 4weeks,

    he has a solid mass under his left ear which started as a small lump and again has grown into a large swelling since we first noticed it 12 weeks ago, of course

    waiting for Drs appointments,then being told throat Cancer....... scans,MRI and biopsies his op date tomorrow its all been a whirlwind of emotion.

    We are not sure if tomorrow they may also take his lymph nodes on his neck then radiotherapy and or chemotherapy? So tomorrow is just the start of a journey that 

    WE will fight together xx

  • A lot to take in at once I’m sure, and can empathise with your different anxieties about chemo,  you sound like you are strong and you will get through what’s ahead. We all will, one step at a time. 
    Will be thinking about you tomorrow xx

  • Thank you so much, its nice just knowing there are others who understand what is next! 

    xxx

  • Hi sharza I tend to keep a journal anyway but have started one specifically for my cancer journey which I find helpful.  Good luck with your story which of course will have a happy ending too.  I also write poetry so who knows perhaps there is one on its way about this whole situation xx

  • Good luck for tomorrow and I'm sending positive thoughts for a successful outcome x 

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