Coping with the wait!

Hi, just wondering how anyone else has been able to cope with waiting for test results.  Have been told I have cancer but waiting for biopsy results to determine whether it's lymphoma and if so what type.  The waiting is so frustrating and upsetting and I feel like I'm on an emotional rollercoaster.  I try to keep myself busy and to avoid researching - although that's quite difficult at times.  Sometimes it's hard to stop my mind wandering to worse case scenario.  I'm sure that there are lots of you in the same position and wondered if you chould share how you are dealing withi it, or just confirm that what I'm going through is perfectly normal :)

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  • I thought I would give you an update on my wait. I have been told my biopsies confirm colorectal cancer, MRI/CT show no spread, but PET Scan booked for 26/3/24. Surgical consult has advised that surgery not an option right now and awaiting an oncologist meeting but told treatment will be chemo and radiotherapy. My oncologist appointment isn’t until the 5th April, seems a while away before it all starts. It’s so hard to keep upbeat and no think about what that means. 
    Hope everyone else’s wait for treatment plans come quickly. 
    Sending prayers to all. xx

  • It's encouraging that the MRI/CT scan; doesn't show any spread of the colorectal cancer  and I am very sorry that you have it at all. 

    It's not natural to feel upbeat at a time like this but it helps that you have a PET scan next week and an  appointment with the oncologist the week after booked. Also a treatment plan (chemo and radiotherapy) outline. Perhaps surgery later?

    The main thing is that we have a fantastic NHS who will do their best to help you get through this. I'm with xxxx who are wonderful and am so thankful for them.

    Wishing you well and praying that everything works out for you.

  • Thanks, you are right, probably just being impatient, and finding it hard not to keep reading about things on the internet!
    yes, we have a fantastic NHS, I have worked in the NHs for nearly 40yrs so now will be on the receiving end of care which is one aspect that I trust without question. 
    Have you had chemo/radiothery? Any advise as to what to expect or prepare for would be greatly appreciated.

    Thanks again. X

  • Actually saw the lung consultant today to follow up recent lung and thyroid biopsies.

    Expect to have lung surgery (removal of one lobe). Am awaiting an appointment with surgeon. Chemotherapy and radiotherapy not needed at the moment.

    Expect to see an Ear, nose and throat consultant to discuss thyroid biopsy result and next steps.

    Simple answer to you question is, no, haven't had chemotherapy or radiotherapy.

    But lots of people on this chat have. Different people have different experiences it seems.

    Am aware that chemotherapy and radiotherapy are sometimes given prior to surgery to reduce the size of the growth.

    Perhaps the nurses could answer you better than me who has no personal experience of chemotherapy or radiotherapy?

    Google has it's uses including making you more anxious. It's also very informative if used discerningly.

    Wishing you well x

  • Hi spring2420 as sharza has said there is some encouraging news there x I had my pet scan on Saturday and results were with consultant this morning x I have my first chemotherapy round tomorrow so will be able to let you know how it goes.

    sending love and positivity to all xx 

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