CA125 at 85 - nurse has me worried

Hi all

I had a blood test done last week as had been needing to urinate quite a lot and was slightly bloated (i now have no symptoms).  CA125 came back high so had been worried all weekend, nurse has just called me to say it was 85 and she is referred me urgently for an ultrasound.  To be honest she was perfectly nice but not reassuring in the slightest and just kept saying it might not be cancer, it could be something benign and saying she was sorry.  I had started to feel a lot less anxious through reading these forums etc.  My anxiety is now sky high!  I have just turned 40 with no other symptoms etc,

Help!

  • My wife (who is 55 years old) is also currently enduring the worry and anxiety with a raised CA125 levels (hers was 88). Her GP had advised her that a level over 35 does not necessarily indicate cancer but warrants further investigation to rule out malignancy and it can be caused by other non-malignant ailments. She was also told by a nurse (not a doctor or oncologist) that she had needed further tests and they just interpret the health notes rather than the patient discussing this with the specialist. She has had an ultrasound and a CT scan where she has got a complex cyst on her right ovary and needs a biopsy to see what it is. However, her GP has told her not to worry about it and whatever the result of the biopsy that it can be treated. She has had some of the symptons where many of these are identical between ovarian cysts and malignancy hence the necessity to have further investigation. At the moment, she is still going through the ruling out process. We are both deeply concerned about this but the worst part of the anxiety is not knowing and fearing the worst. We have been reassured that the NHS does have all sorts of treatment, drugs and therapies at their disposal and when it comes to emergency treatment, patients are treated as a matter of urgency. We keep our fingers crossed as we do for everyone else going through the uncertainty of anxiety but take one day at a time knowing that there should be a good outcome to this.

  • Thank you for replying.  Fingers crossed for your wife and for everyone going through this.  I have very bad health anxiety now as have lost very close family members in recent years which was why i went to the doctor in the first place (i am there often i admit) but this is the first time ive had any major worry apart from a mammogram last year which was clear and i cant face the wait for the ultrasound and then more wait.  cant stop my mind jumping 100 steps in front especially as the nurse was so sympathetic, like she was giving me the most awful news.

  • Also, i would be very much holding on to the advice of your GP re your wifes cyst.  Great that it can be treated regardless of result.

  • I hope that you have a positive outcome to this and don't look at Dr. Google or interpret statistics as this makes the anxiety worse on top of agonosing over the waiting game. Everyone's situation is unique. I had an vitreous haemmorrhage (retinal detachment) about 3 years ago and although I was scared I would lose the sight in that eye, I had put my faith in the eye surgeon who reattached it and have so far not had any problems. We have been told to alleviate the anxiety is to base our thought process of facts (not interpretation or assumption) from those who are specialists in their field of expertise and are often more reassuring of there being a positive outcome. Whilst I think that nurses also do a great job, a lot of them are not in a position to advise concerned patients on specualting on the outcomes but should indicate the next stages of the prognosis and should say that this should be discussed with a consulting doctor or a surgeon at their appointment. We have got it in our minds to focus on diagnosis outcomes, treatments and ultimately a cure to get back to normal again. We are keeping our fingers crossed that everyone on here who is concerned about a malignant diagnosis can have the treatment to cure them and the treatments are constantly improving as time progresses onwards into the future.