Hello Hope4132, 

I am so sorry to hear about your worries about your enlarged spleen. It's good though that they are taking it seriously and that they have ordered all these tests to investigate what the cause might be and hopefully you will be seen soon by the specialist at haematology. It's a shame that you live in an area where waiting lists are very long and I really hope that you won't need to wait very long. 

It does sound like the pain is very strong and if it is making you cry and affecting your quality of life, it may be a good idea to give your GP a call and see if they can give you adequate pain relief. 

Other members of our community may have also been affected by enlarged spleens and will be along shortly to share their experience with you. 

I hope that you get some definite answers soon on what is causing this swollen spleen and that it all turns out to be nothing of concern. Keep us updated if you don't mind when you find out more. We'll be keeping everything crossed for you!

Best wishes, 

Lucie, Cancer Chat Moderator

Hi Amilia, Sorry I’m just updating now, there has been quite a few things going on.

I spent 8 days in hospital (just got out last week) where the doctors did blood tests everyday. There is high calcium levels and a lymph node was found but might need a biopsy in 6 months pending review.

A CT was done of my stomach and my spleen turned out to be enlarged because of Liver Cirrhosis. I’m still coming to terms with this diagnosis as I don’t drink or anything.

The liver Cirrhosis is caused by newly diagnosed type 2 diabetes.

I’ve lost just over a stone in weight already within two weeks and feeling worse.

My advice would be to keep pushing the doctors, secretary or even your gp. You know your own body and an enlarged spleen is terrifying (especially when googling it) and can be quite painful.

Don’t let them put you down, I was told many times that the pain shouldn’t be as severe but another doctor had told me that the pain was coming from the spleen.

i hope your cause is found and that your spleen returns to normal!

*update*

Received a letter earlier today for an ultrasound guided core biopsy of a lymph node under my arm, absolutely terrified!