What if I didn’t have my lymph nodes removed.?

I had right side mastectomy just before Christmas with various complications after the drain was removed. I had a huge seroma, which was drained twice, stiff arm, infection which took three weeks of antibiotics. I’m told that foour out of five nodes removed were cancerous. Ihave therefore been given a date for getting all my arm nodes removed.

I also have Parkinson’s disease, and I’m really not looking forward to all of the side effects again. What would my prognosis be if I were to refuse the surgery..?

  • Hi Elsie,

    A very warm welcome to our forum.


    I  am sorry to hear that you had complications following your surgery and that some of your lymph nodes were cancerous.  Do you know what type and stage your breast cancer was? Some cancers are more aggressive than others, which is why I ask, as they are the ones that are more likely to spread. I can understand that recovery will be more challenging with your Parkinson's, but it won't be impossible. Unless they remove the rest of your nodes on that side, they won't know how far your cancer has spread. If some cancerous nodes are left behind, there is a chance that the cancer could spread. There is no definitive answer as to what your prognosis would be, but the best person to advise you would be your consultant, who has all of your other medical details to hand. Place your trust in his/her experience and expertise and take their advice.

    I have had 2 bouts of breast cancer. I had a lumpectomy the first time and a double mastectomy for the second bout. Like you, I had some very large seroma following surgery. I had these aspirated over a few months and had to take antibiotics. I got great relief each time that they were aspirated, so they were no great problem.

    Whatever you decide, I hope that it is the right decision for you.

    Please keep in touch and let us know know you decide. We are always here for you.

    Kind regards,

    Jolamine xx