A year on, no diagnosis and even more confused

Hey,

5 years ago, I had sepsis, and the cause was eventually figured out to be an ovarian cyst. They drained it, I spent 3 weeks in hospital, and about 6 months later had a laparotomy to remove the cyst.

For well over a year now, I have had a constant pain where my left ovary is, it gets worse during ovulation or when I need to make a bowel movement. I can’t really explain it, it just feels heavy, occasionally twisty and just like a pressure there. I’ve been getting increasingly wiped out, often needing a nap to get through the day, and sleeping more than 14 hours a night at weekends - and I’m still exhausted. 

I saw my GP about it last January, who ordered blood tests. My platelets came back at 640, and various other ones were raised too, the film comment was “ likely reactive thrombosis. Monitor”

I’ve had blood tests every 3 months since, and whilst my platelets have occasionally decreased, they’ve never dropped below 570. The last set came with a comment that said “ Platelets count persistently increased with anisocytosis. Refer to Haematology”. That was back in October and I’ve had nothing from anyone. 

Every time I submit an e-consult to my GP about the pain and how I’m feeling, I either don’t get a call, or get a message asking me to book a blood test. 

Today, whilst nurse was taking my blood, I saw a note on her to screen with a list of tests requested - one of them being for CA125. 

And now I’m petrified. My appointment was at 10am, and by noon, results were already coming through on my NHS app. My platelets, neutrophils and white cell count are well out of range. There is nothing for the CA125 yet, but I can’t stop refreshing the app. How long does the test normally take? 

Has anyone been through anything similar and what was your outcome? 

  • Hello SWHF,

    Waiting times do vary and if you haven't had your results yet, it's important to focus on other things while you wait, because your wellbeing needs to be looked after. When youre worried that you may have cancer, it's difficult not knowing all the answers, but worrying can end up increasing anxiety rather than making you feel better. There are some useful tips here.

    I hope this helps,

    Moderator Anastasia