What to expect with secondary brain cancer

My dad was diagnosed with lung cancer and secondary brain cancer and given weeks to live on 31.10.2023.

The journey since has been hurrendous with neglect from every service going to include home care when his mobility went.

We have gone for multiple biopsies and been turned away as dad wasn't well enough. Every dr/specialist has their new opinion that totally contradicts the last. It's been the worst experience in every way possible.  There is no support out there for my dad or me. Even hospice were rude and when my dad picked up a bit they turfed him out 22nd December!!  Since then the hospice nurse hasn't even been in touch when she promised continual visits. 

My dad is now in a nursing home. He has started forgetting things and getting very muddled. He has began to cry alot and this is not my dad at all, this does coincide with a family fall out between him and my brother where my brothr walked away! He is coming back today.

Please can someone point me in the direction of counciling and explain what will happen with dad. Will he end up forgetting who i am? The home have told me they think this is the start of the rapide decline.

No one has explained to us what may happen or what to expect. I've just been told by an acquaintance that I'm going to go thriugh hell with this.

I'm so lost and heartbroken and not even my small family have stepped up to support me.

  • Hi GAZZ, 

    I noticed you haven't had a reply to your post just yet so I just wanted to offer you a very warm welcome to the Cancer Chat community and let you know that your post has been seen.

    I'm so sorry to read everything you and your dad have been through and for the lack of support you have had along the way. I can't begin to imagine how difficult this has been, but I'm glad you've reached out to us as we have a lot of members who have been in your position, so you are not alone, and hopefully it won't be long until some of them stop by to offer their support and share their experiences and advice.

    You can find out more about counselling and what to expect when someone is dying on our website, but for further information and advice do give our cancer nurses a call. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They are very easy to talk to and will do all they can to help you at this very challenging time.

    We're here for you GAZZ and are sending all our strength and support your way.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Thank you so much for your reply, that means a lot.