Doctor FORGOT to press send - beyond stressed

My Doctor told me they had a made a red flag referral for a breast lump and shrinking breast on December 4th. I was worried as I hadn't heard from the hospital yet and it's been almost 3 weeks so I called them today to see if I could take a cancellation. Turns out my doctor didn't press send on their referral. I am so mad, and stressed and sad and overwhelmed with feelings. I haven't been to the doctor in 4 years because I can never get an appointment. Now when I managed to get one, they totally break my trust. I just don't know what to do. The hospital told me that their red flag (2ww) time is currently about 6 weeks from when they receive the referral. Because my doctor hasn't sent it yet and isn't in until after Christmas it will be at least 10 weeks. If it's something sinister I don't know how I will cope. Early detection is vital and this wait is unbearable. We can't afford private care so just feel alone and stuck. 

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  • Hi Gnomes.

    A very warm welcome to our forum, although I'm sorry to hear why you are here.

    This is always an anxious wait, without having unnecessary delays such as this. Once the referral has been sent it would be worth phoning your consultant's secretary again. If you explain what has happened and offer to take any cancellations, there is a good chance that you might be seen sooner. In the meantime, try to steer clear of google. Most of the information there is aimed at the more spectacular cases, won't apply to you and will only serve to worry you further. Keep yourself busy, either with work or a pastime. Only 20% of referrals to the breast clinic, turn out to be cancerous. Most cases are benign cysts, fibroadenoma or due to hormonal changes.

    I sincerely hope that you manage to get an appointment through soon. Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine,

    Thank you so much for your kind words. Thankfully Christmas is here to keep me busy...my turn to do the cooking this year! 

    My head is telling me the lump is most likely a fibroadenoma but I have now noticed what feels like a swelling under my breast that my gut says might be something more worrying and explain the shrinking breast. I'm honestly trying not to dwell on it as there's nothing I can do until I get seen, but that's a lot easier said than done as I'm sure you know!

    I think the shock, frustration and anger at the whole situation will gradually pass but it will be hard to fully trust that doctor again which is really sad to me. I am usually trusting to a fault which is why I didn't do anything until almost the 3 week mark as I assumed the breast clinic was just overworked coming up to Christmas and I didn't want to add to their work load unnecessarily. 

    Fingers crossed the doctor can sort something out when they get back to work after Christmas! 

    Hope you have a lovely and relaxing Christmas this year xx

  • OMG! I'm so sorry that happened to you - must have been terrifying! Hopefully it is something to do with that though and nothing worse. Fingers crossed all goes well on Tuesday for you! The lump I initially went to my doc about I'm pretty sure is a breast mouse too, but the other lump I found later is more worrying as it doesn't move at all. I'm hoping it's a cyst or something but really trying to not think about it until I get answers!

  • Same my partner keeps saying don't worry untill there's something to worry about easier said than done though xx

  • Hi Kriss,

    Your partner's soothing words are meant well and come from a good place. This is something that makes absolute sense, when we think about it sensibly. The trouble is that none of us think sensibly about much, at this stage and find these placatory remarks, really frustrating. Try not to let them annoy you. Believe it or not, irrespective of the outcome, you'll feel better in yourself, once you know what you are dealing with.

    I shall be thinking of you on Tuesday and sincerely hope that all turns out well.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Gnomes,

    I am glad to hear that you managed to enjoy Christmas.

    I am so sorry to hear that you would still have had to wait until February for an appointment, despite the fact that the wait was due to your GP's error. I hope that you have kept your name on the NHS list, until you hopefully, get the all clear from the private consultation. Treatment costs can mount up quickly. If you still have your name on the waiting list, and do turn out to need further treatment, you won't have so long to wait.

    I shall be thinking of you on Thursday and I sincerely hope that nothing untoward is found.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi  thank you for your reply I will most deffinatly keep you posted Tuesday on the outcome fingers crossed for a good one xx

  • Hi Kris,

    Just wanted to check in and see how your appointment went today? Hope you're doing ok tonight after it xx

  • Hi Jolamine,

    Thank you so much for your kind words and advice. I haven't told the hospital that I am going private yet, but had to let my GP know so I could get a referral letter. I almost laughed reading it - she had listed the wrong breast, described the placement of the lump in a different area, and said their was no change in shape, size, or appearance when there is a big dent in my breast and it is noticeably smaller than the other one! This on top of forgetting to send the referral in the first place really doesn't fill me with confidence in her! 

    I'm hoping that my GP doesn't somehow get me taken off the NHS list because if treatment is required that's definitely the route I would have to go, and just hope the consultant knows which breast to treat! Fingers crossed I get the all clear though - positive thinking is my mantra these days!

  • Hi Gnomes,

    This certainly won't increase your confidence in your GP.

    You are just as well to stay on the NHS list, until you get your private results. I'm sure that you.ve got a good tongue in your head, and will be well able to direct your consultant to the correct breast and lump placement, as well as giving a more accurate history.

    I shall be thinking of you on Thursday and I hope that all goes well for you.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi  all was well it was just fatty breast tissue so relieved xx

  • That's fantastic news! I'm so happy for you :)

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